ALSTROM SYNDROME UK

Registered charity 1071196 · accounts filings on the Charity Commission register · also known as AS UK

Provides information and support to people living with Alstrom Syndrome (AS) and to their families and service providers working with them. Working with Birmingham Woman's and Children's Hospital and Queen Elizabeth Hospital Birmingham to deliver a highly specialised service. As a patient led organisation , the needs and wishes of people affected by AS remain at the heart of all we do.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income
£379k
Latest spending
£335k
Registered
1998
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity held unrestricted reserves of £212,740, resulting in a net income surplus of £43,987 for the year. The trustees confirmed that adequate resources are available to fund activities for the foreseeable future, with no material uncertainties identified regarding the going concern status.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Public fundraising profile: JustGiving — Alstrom Syndrome UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£379k£335k
31/03/2024£355k£341k
31/03/2023£371k£365k
31/03/2022£300k£303k
31/03/2021£375k£232k

Common questions

Is ALSTROM SYNDROME UK financially healthy?

Per its FY2025 accounts: The accounts state that the charity held unrestricted reserves of £212,740, resulting in a net income surplus of £43,987 for the year. The trustees confirmed that adequate resources are available to fund activities for the foreseeable future, with no material uncertainties identified regarding the going concern status. Its FY2025 accounts were independently examined.

Who funds ALSTROM SYNDROME UK?

Funders whose own accounts filings name ALSTROM SYNDROME UK as a grant recipient include THE AIM FOUNDATION, THOMAS POCKLINGTON TRUST, THE MILLICHOPE FOUNDATION.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
THE AIM FOUNDATIONFY2023£340kEarly Years (Sylvia Adams Trust)
THE AIM FOUNDATIONFY2024£113kMulti-year grant payment
THOMAS POCKLINGTON TRUSTFY2022£10kTargeted funding programme
THE MILLICHOPE FOUNDATIONFY2023£2k
THE MILLICHOPE FOUNDATIONFY2025£2k
THE MILLICHOPE FOUNDATIONFY2022£2k

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
The National Lottery Community Fund21/05/2026£377kRareSource IDEA (Inclusion Diversity Equity Accessibility) Hub
Sport England02/10/2025£14kMove Together - Grow Together
The National Lottery Community Fund08/07/2020£63kBreaking Down Barriers Covid 19 Crisis Management
Sport England15/05/2020£10kCOVID-19 CEF
Sport England28/03/2014£10kSports Buddies Project
The National Lottery Community Fund23/09/2010£10kCiliopathy Alliance UK
The National Lottery Community Fund20/10/2009£344kBringing hope to Alstrom Patients
The National Lottery Community Fund05/10/2008£8kGiving Hope to Alstrom Patients
The National Lottery Community Fund21/07/2005£3kday trip

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with BIRMINGHAM WOMEN'S AND CHILDREN'S HOSPITAL CHARITY.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
ALSTROM SYNDROME UK£379k—0unclear—no doubt
BIRMINGHAM WOMEN'S AND CHILDREN'S HOSPITAL CHARITY FY2025£9.0m——above35.0%no doubt
THE ALKAPTONURIA SOCIETY LTD FY2025£368k—0unclear—no doubt
ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED FY2024£174k—0unclear—no doubt
THE FRIENDS OF ALYN ORTHOPAEDIC HOSPITAL FOR CHILDREN, JERUSALEM FY2025£208k—0unclear—no doubt
ALYMOS LTD FY2025£401k—0above—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.