WOLFRAM SYNDROME UK

Registered charity 1152445 · accounts filings on the Charity Commission register · also known as WSUK

WOLFRAM SYNDROME UK PROVIDES INFORMATION, FAMILY SUPPORT AND ADVICE FOR INDIVIDUALS AFFECTED, THEIR FAMILIES, CARERS AND PROFESSIONALS. WE WORK CLOSELY WITH BIRMINGHAM CHILDREN'S HOSPITAL & SOON QEH, BIRMINGHAM TO SUPPORT THE MULTI-DISCIPLINARY CLINICS FOR WS PATIENTS. WE RAISE MONEY FOR RESEARCH. WE ENDEAVOUR TO RAISE AWARENESS OF WOLFRAM SYNDROME. WE PROVIDE A 24 HOUR ANSWER-MACHINE HELP-LINE.

Objects

1)TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF WOLFRAM SYNDROME AND RELATED SYNDROMES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT,EDUCATION, FINANCIAL ASSISTANCE WHERE POSSIBLE AND PRACTICAL ADVICE.(2)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AS WELL AS THE MEDICAL PROFESSION IN ALL AREAS RELATING TO WOLFRAM SYNDROME AND RELATED SYNDROMES

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Other Charitable Purposes · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity reported a net deficit of £18,495 for the year ended 28 February 2025, resulting in a decrease in total funds from £131,026 to £112,531. Per the trustees' report, unrestricted reserves fell to £28,508, while the trustees maintain that current funding levels are adequate to support the continuation of the charity and fulfill its obligations. The filing confirms the charity is a going concern with no material uncertainties regarding its ability to continue in operation.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — WSUK (matched by registered charity number).

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• Jeans for Genes — “WSUK awarded £5,000 grant from Jeans for Genes” (source page)

Public-sector contracts awarded

From the official Contracts Finder and Find a Tender notices (supplier matched by exact registered name). Contract income is distinct from grants.

Public profiles (found on the charity’s own website): facebook

Trustees · trustee networks

• John Isherwoodchair
• ALAN NYE
• Abby Gardner
• PAUL LYNCH
• PROF TIM BARRETT

Trustee list from the Charity Commission register (current, not historical).

Operates in: Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).