CRELD1 WARRIORS
To provide support for families caring for a child with CRELD1, to raise awareness of this very rare disease and to support medical research.
Objects
TO RELIEVE THE NEEDS OF CHILDREN WITH CRELD1 GENE SEQUENCE VARIATION AND RELATED DISORDERS AND THEIR FAMILIES THROUGH: A) PROVIDING SUPPORT FOR FAMILIES CARING FOR A CHILD WITH THIS CONDITION;B) INCREASING THE UNDERSTANDING OF THE PUBLIC ON THIS SUBJECT;C) MAKING GRANTS TO SUPPORT RESEARCH FOR SUCH PURPOSES;D) SUCH WAYS AS THE TRUSTEES MAY DETERMINE.IN THESE OBJECTS ‘CRELD1’ (CYSTEINE RICH WITH EGF LIKE DOMAINS 1) IS A PROTEIN CODING GENE. SEQUENCE CHANGES IN THE CRELD1 GENE ARE TYPICALLY ASSOCIATED WITH THE CAUSE OF ATRIOVENTRICULAR SEPTAL DEFECT (AVSD).
Financial health, per its FY2025 accounts
The accounts state that the charity holds unrestricted reserves of £94,922, which exceeds its stated policy target of £10,000–£12,000. However, the trustees note that access to grants is harder than anticipated and that future fundraising is required to sustain operations and complete ongoing research projects.
What the accounts disclose
“we would look to hold a general reserve in the range £10,000 - £12,000 to cover unfunded committed costs for the next 6 months.”
“Fundraising enough money to be able to make the impact we want to make. Access to grants is much harder than anticipated, but something we are working on.”
Trustees
- Jessica Clatworthychair
- Adam Neal Clatworthy
- Emma Jayne Court
- Kate Edwards
- Oliver Michael Folliot Powell
- Samantha Lusty
- WILLIAM MARCUS CHRISTOPHER CAMPBELL
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 05/04/2025 | £105k | £10k |
Common questions
Is CRELD1 WARRIORS financially healthy?
Per its FY2025 accounts: The accounts state that the charity holds unrestricted reserves of £94,922, which exceeds its stated policy target of £10,000–£12,000. However, the trustees note that access to grants is harder than anticipated and that future fundraising is required to sustain operations and complete ongoing research projects. Its FY2025 accounts were independently examined.
Who funds CRELD1 WARRIORS?
Funders whose own accounts filings name CRELD1 WARRIORS as a grant recipient include THE BILLMEIR CHARITABLE TRUST.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| THE BILLMEIR CHARITABLE TRUST | FY2025 | £2k |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE COMMUNITY OF ST JOHN BAPTIST GENERAL PURPOSES CIO | 1 | £1.7m |
| THE MELETE FOUNDATION | 1 | £10k |
| THE HISCOX FOUNDATION | 1 | £1k |
Charities like this
- THE MILLIE WRIGHT CHILDREN'S CHARITY
- MICHAEL CRAWFORD CHILDRENS CHARITY
- CdLS Foundation UK & Ireland
- WEALDEN CITIZENS ADVICE
- CURE DHDDS
- 1ST RUDGWICK GROUP
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| CRELD1 WARRIORS | £105k | — | 0 | unclear | — | noted |
| THE MILLIE WRIGHT CHILDREN'S CHARITY | £71k | — | — | unclear | — | no doubt |
| MICHAEL CRAWFORD CHILDRENS CHARITY | £132k | — | 0 | unclear | — | no doubt |
| CdLS Foundation UK & Ireland | £54k | — | 0 | above | — | no doubt |
| WEALDEN CITIZENS ADVICE | £391k | — | 0 | unclear | — | no doubt |
| CURE DHDDS | £131k | — | 0 | unclear | — | no doubt |