MARFAN TRUST

Registered charity 1198847 · accounts filings on the Charity Commission register

Marfan Trust raises funds to support medical research so that more is know about Marfan syndrome and its management. The results of our internationally recognised research enables doctors and surgeons to provide better treatment for patients in the short and long term. Our helpline and website www.marfantrust.org provide information. An annual supporter information day is held in October.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income

£287k

Latest spending

£246k

Registered

2022

Accounts read

FY2024

Financial health, per its FY2024 accounts

The Marfan Trust reported a surplus of £41,072 for the year ended 31 December 2024, with total unrestricted reserves standing at £393,621. The charity maintains a reserves policy to designate funds sufficient to cover core and research costs for two years, currently holding £247,675 in designated funds. The trustees state that the charity is financially healthy, supported by legacy income and donations, with no material uncertainties affecting its ability to continue as a going concern.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: two years of core and research costs (held: £394k)

“At the end of each financial year, the Trustees designate an amount from the general fund that will be sufficient to service the ongoing core costs and research costs for 2 years.”

Per its FY2024 accounts as filed with the Charity Commission.

Accounts audited by Hazlewoods LLP. Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Marfan Trust (matched by registered charity number).

Structured financials (annual return, FY ending 31/12/2023)

Total income

£631k

Total spending

£31k

Cost of raising funds

£208

Reserves (reported)

£600k

Employees

Reported reserves equal ~231.9 months of spending — in the top quarter for charities its size (median 7.0 months; benchmarks).

Register events

Received assets from another charity (14/03/2024) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

Dr Anne Childchair
Andrew Scadding
Dr Nitha Naqvi
Edward Stilliard
Eleanor Hyde
Helen Syms
James McCallum
Mohamed Essam Gamil Abdelrazek
Robin Randall

Trustee list from the Charity Commission register (current, not historical).

Operates in: Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/12/2024	£287k	£246k
31/12/2023	£631k	£31k
31/12/2022	£0	£0

Common questions

Is MARFAN TRUST financially healthy?

Per its FY2024 accounts: The Marfan Trust reported a surplus of £41,072 for the year ended 31 December 2024, with total unrestricted reserves standing at £393,621. The charity maintains a reserves policy to designate funds sufficient to cover core and research costs for two years, currently holding £247,675 in designated funds. The trustees state that the charity is financially healthy, supported by legacy income and donations, with no material uncertainties affecting its ability to continue as a going concern. Its FY2024 accounts were audited by Hazlewoods LLP.

Who funds MARFAN TRUST?

Funders whose own accounts filings name MARFAN TRUST as a grant recipient include THE INMAN CHARITY.

Known funders

Grants to this charity found in funders’ own accounts filings.

Funder	Year	Amount	Purpose (as stated by the funder)
THE INMAN CHARITY	FY2025	£6k	Medical - Research