MARFAN TRUST

Registered charity 1198847 · accounts filings on the Charity Commission register

Marfan Trust raises funds to support medical research so that more is know about Marfan syndrome and its management. The results of our internationally recognised research enables doctors and surgeons to provide better treatment for patients in the short and long term. Our helpline and website www.marfantrust.org provide information. An annual supporter information day is held in October.

Objects

THE OBJECTS OF THE CIO ARE: TO ADVANCE EDUCATION REGARDING, AND PROMOTE RESEARCH INTO THE NATURE OF, MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS, METHODS OF TREATMENT AND TO DISSEMINATE THE USEFUL RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE PUBLIC; AND THE PRESERVATION AND PROTECTION OF THE HEALTH OF PERSONS WITH MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS AND THE RELIEF OF NEED OF PERSONS WITH MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS AND THEIR FAMILIES BY PROVIDING ADVICE AND SUPPORT.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2024 accounts

The Marfan Trust reported a surplus of £41,072 for the year ended 31 December 2024, with total unrestricted reserves standing at £393,621. The charity maintains a reserves policy to designate funds sufficient to cover core and research costs for two years, currently holding £247,675 in designated funds. The trustees state that the charity is financially healthy, supported by legacy income and donations, with no material uncertainties affecting its ability to continue as a going concern.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by Hazlewoods LLP. Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Investing charity funds policy and procedures
• Investment
• Paying staff
• Safeguarding policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Public fundraising profile: JustGiving — Marfan Trust (matched by registered charity number).

Structured financials (annual return, FY ending 31/12/2023)

Reported reserves equal ~231.9 months of spending — in the top quarter for charities its size (median 7.1 months; benchmarks).

Per its annual return, largest income source: Other (97% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 0.0% of total income — below the median for charities its size (3.0%) (benchmarks).

Register events

• Received assets from another charity (14/03/2024) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Dr Anne Childchair
• Andrew Scadding
• Dr Nitha Naqvi
• Edward Stilliard
• Eleanor Hyde
• Helen Syms
• James McCallum
• Mohamed Essam Gamil Abdelrazek
• Robin Randall

Trustee list from the Charity Commission register (current, not historical).

Operates in: Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with The Aortic Dissection Charitable Trust.

• The Aortic Dissection Charitable Trust income £288k
• THE MARCELA TRUST income £8.3m
• THE EHLERS-DANLOS SUPPORT UK income £435k
• CYSTIC FIBROSIS TRUST income £12.0m
• HUMANIMAL TRUST income £926k
• ASTHMA ALLERGY AND INFLAMMATION RESEARCH TRUST LIMITED income £320k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.