THE EHLERS-DANLOS SUPPORT UK

Registered charity 1157027 · accounts filings on the Charity Commission register · also registered in Scotland as SC046712 (OSCR)

Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income
£435k
Latest spending
£392k
Registered
2014
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity ended the year with a net movement in funds of £42,281, resulting in total unrestricted reserves of £146,383. Per the trustees' report, the charity maintained reserves equivalent to five months of operating expenditure at year-end, having previously dropped below its six-month policy target. The trustees expect to return to the six-month coverage target by March 2026.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves position: below the charity's own stated reserves policy (held: £146k; policy: six months’ operating expenditure)
“Recourse to this flexibility was made during the year under review but we are pleased to report that by year end coverage had improved to 5 months’ operating expenditure”
Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — EDS UK (Ehlers-Danlos Support UK) (matched by registered charity number).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£435k£392k
31/03/2024£380k£429k
31/03/2023£424k£537k
31/03/2022£484k£496k
31/03/2021£407k£405k

Common questions

Is THE EHLERS-DANLOS SUPPORT UK financially healthy?

Per its FY2025 accounts: The accounts state that the charity ended the year with a net movement in funds of £42,281, resulting in total unrestricted reserves of £146,383. Per the trustees' report, the charity maintained reserves equivalent to five months of operating expenditure at year-end, having previously dropped below its six-month policy target. The trustees expect to return to the six-month coverage target by March 2026. Its FY2025 accounts were independently examined.

Who funds THE EHLERS-DANLOS SUPPORT UK?

Funders whose own accounts filings name THE EHLERS-DANLOS SUPPORT UK as a grant recipient include THE SANDHU CHARITABLE FOUNDATION, PILKINGTON CHARITIES FUND, THE WO STREET CHARITABLE FOUNDATION, The Squire Patton Boggs Charitable Trust, Evelyn Partners Charitable Trust.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
THE SANDHU CHARITABLE FOUNDATIONFY2022£75k
THE SANDHU CHARITABLE FOUNDATIONFY2023£74k
THE SANDHU CHARITABLE FOUNDATIONFY2025£30k
PILKINGTON CHARITIES FUNDFY2025£5k
THE WO STREET CHARITABLE FOUNDATIONFY2024£3k
The Squire Patton Boggs Charitable TrustFY2022£500The Advancement of Health or Saving of Lives
Evelyn Partners Charitable TrustFY2024£0Employee grant support programme

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
The National Lottery Community Fund03/02/2026£20kEDS UK: Closing the health inequality for people with EDS and HSD in Wales
The National Lottery Community Fund31/07/2025£20kSupport groups for people with EDS: Peer to peer support in safe spaces
The National Lottery Community Fund17/02/2025£20kSupport groups for people with EDS: Peer to peer support in safe spaces.
Sport England14/10/2024£12kMaking movement accessible
UK government14/10/2024£12kALB-Sport England-Making movement accessible
The National Lottery Community Fund03/07/2024£20kEmpowering people with EDS to support each other
The National Lottery Community Fund21/04/2023£10kSupport groups for people with Ehlers-Danlos syndromes
The National Lottery Community Fund21/03/2023£10kSupport groups for people with Ehlers-Danlos syndromes
The National Lottery Community Fund18/07/2019£10kVascular EDS conference
The National Lottery Community Fund18/04/2019£243kExpanding communities
The National Lottery Community Fund11/05/2016£10kA conference to educate medical professionals and patients about vascu
The National Lottery Community Fund01/12/2014£282kEDS Community Matters
The National Lottery Community Fund19/11/2014£10kProvide physical activities for children with Ehlers-Danlos Syndrome

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE EHLERS-DANLOS SOCIETY.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
THE EHLERS-DANLOS SUPPORT UK£435k—0below—no doubt
THE EHLERS-DANLOS SOCIETY FY2025£1.6m——unclear—no doubt
CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND) FY2024£4.9m—0unclear—no doubt
HBDCA FY2025£162k—0unclear—no doubt
MYOSITIS UK FY2025£140k—0unclear—no doubt
FND HOPE UK FY2024£274k—0unclear—not going concern

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.