INTERNATIONAL GAUCHER ALLIANCE

Registered charity 1192011 · accounts filings on the Charity Commission register

The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.

Objects

THE OBJECTS FOR WHICH THE COMPANY IS ESTABLISHED ARE THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH AMONGST PEOPLE SUFFERING FROM THE RARE GENETICALLY INHERITED CONDITION OF GAUCHER DISEASE WHEREVER THEY ARE IN THE WORLD ("OBJECTS") AND IN DOING SO THE COMPANY WILL: 1.1 COLLECT INFORMATION ON THE LATEST DEVELOPMENTS IN THE UNDERSTANDING, MANAGEMENT AND TREATMENT OF GAUCHER DISEASE AND TO DISSEMINATE SUCH INFORMATION TO ALL PARTIES WHO HAVE AN INTEREST IN GAUCHER DISEASE AND OTHER SIMILAR DISORDERS;1.2 PROVIDE INFORMATION SUPPORT GUIDANCE AND ENCOURAGEMENT TO GROUPS OF INDIVIDUALS REPRESENTING GAUCHER PATIENTS GLOBALLY;1.3 REPRESENT THE INTERESTS OF GAUCHER PATIENTS TO EUROPEAN AND INTERNATIONAL ORGANISATIONS AND BODIES AND TO ENSURE THAT THE VOICE OF THE GAUCHER PATIENT IS HEARD AT ALL TIMES.1.4 ENCOURAGE AND PROMOTE SCIENTIFIC AND MEDICAL RESEARCH INTO GAUCHER DISEASE AND IMPROVED THERAPEUTIC APPROACHES AND TO SEEK TO ENSURE ALL SUCH RESEARCH RECOGNISES THE CENTRALITY OF THE GAUCHER PATIENT.1.5 WORK WITH THE MEDICAL AND SCIENTIFIC COMMUNITY TO DEFINE PRIORITIES IN THE UNDERSTANDING OF GAUCHER DISEASE ITS MANAGEMENT AND TREATMENT.1.6 WORK WITH, FACILITATE, SUPPORT AND ENCOURAGE THE ACTIVITIES OF THE EUROPEAN WORKING GROUP ON GAUCHER DISEASE (EWGGD) AND OTHER ORGANISATIONS OR WORKING GROUPS WITH SIMILAR OBJECTIVES.1.7 BE A FORUM TO ADDRESS ETHICAL ISSUES ARISING FROM THE STUDY OF GAUCHER DISEASE 1.8 ENSURE THAT APPROPRIATE TREATMENT IS AVAILABLE TO ALL PATIENTS WITH GAUCHER DISEASE WHO REQUIRE TREATMENT REGARDLESS OF RACE, CREED, COLOUR ETHNIC ORIGIN OR NATIONAL OR RELIGIOUS BACKGROUND; AND1.9 CARRY OUT ANY OTHER ACTIVITIES THAT ADVANCE THE OBJECTS.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Latest income

£258k

Latest spending

£248k

Registered

2020

Accounts read

FY2024

Financial health, per its FY2024 accounts

The accounts state that unrestricted reserves of £169,063 are above the charity's stated policy target of £104,358. However, the trustees note that charitable activities are dependent on uncertain future funding streams, which impacts the going concern basis.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Highest-paid employee band: £70,001 - £80,000 — above the 90th percentile for charities its size (median £60k)

“The number of employees whose emoluments including taxable benefits but excluding employer's pension contributions fall into the following bands were : £70,001 to £80,000” — page 18

Per its FY2024 accounts as filed with the Charity Commission.

Employees paid over £60,000: 1

“The number of employees whose emoluments including taxable benefits but excluding employer's pension contributions fall into the following bands were : £70,001 to £80,000” — page 18

Per its FY2024 accounts as filed with the Charity Commission.

Reserves policy: six months of operating costs (held: £169k)

“The Board of Trustees of the International Gaucher Alliance have agreed a general fund reserves policy of maintaining reserves equivalent to no less than six months of operating costs below which a meeting of the Trustees would be convened to formally discuss the issue. This policy currently reflects a minimum level of reserves of £104,358.” — page 8

Per its FY2024 accounts as filed with the Charity Commission.

Going concern: noted by the trustees or auditor

“The charitable activities are entirely dependent on continuing grant aid and voluntary donations. As a consequence, the going concern basis is dependent on the future flow of these uncertain funding streams.” — page 16

Per its FY2024 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 6 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

Bullying and harassment policy and procedures
Campaigns and political activity policy and procedures
Complaints policy and procedures
Conflicting interests
Engaging external speakers at charity events policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Paying staff
Risk management
Safeguarding policy and procedures
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

Register events

Received assets from another charity (21/12/2020) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

Aimee-Kate Bosch
Andre Balzekiene
Aviva Rosenberg
Christine White
Diana Paulina Pena Aragon
Irena Znidar
Patricia Lucki Zifonsky
Raul Chertkoff
Suyog Sathe

Trustee list from the Charity Commission register (current, not historical).

Operates in: Albania · Argentina · Australia · Austria · Belgium · Bosnia And Herzegovina · Botswana · Brazil · Bulgaria · Canada · China · Colombia

Income and spending

Financial year end	Income	Spending
31/12/2025	£258k	£248k
31/12/2024	£335k	£384k
31/12/2023	£396k	£365k
31/12/2022	£251k	£293k
31/12/2021	£294k	£267k

Common questions

Is INTERNATIONAL GAUCHER ALLIANCE financially healthy?

Per its FY2024 accounts: The accounts state that unrestricted reserves of £169,063 are above the charity's stated policy target of £104,358. However, the trustees note that charitable activities are dependent on uncertain future funding streams, which impacts the going concern basis. Its FY2024 accounts were independently examined.

What does the highest-paid employee of INTERNATIONAL GAUCHER ALLIANCE earn?

Per its FY2024 accounts, the highest-paid employee was in the £70,001 - £80,000 band, and 1 employees earned over £60,000.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Funder	Similar charities funded	Amount to them
THE D'OYLY CARTE CHARITABLE TRUST	1	£12k
THE CATHERINE COOKSON CHARITABLE TRUST	1	£4k
THE ASTOR FOUNDATION	1	£1k
MAY HEARNSHAW CHARITABLE TRUST	1	£1k
THE OAKDALE TRUST	1	£1k
THE BARBOUR FOUNDATION	1	£1k
NORMANBY CHARITABLE TRUST	1	£1k

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with INTERNATIONAL ALLIANCE OF PATIENTS' ORGANIZATIONS.

INTERNATIONAL ALLIANCE OF PATIENTS' ORGANIZATIONS income £595k
ILEOSTOMY AND INTERNAL POUCH ASSOCIATION income £343k
THE GEOGRAPHICAL ASSOCIATION income £1.2m
Association of Upper Gastrointestinal Surgery of Great Britain and Ireland income £506k
GENETIC ALLIANCE UK LTD income £886k
ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED income £174k

Side by side with its peers

Charity	Income	Top pay band	Staff >£60k	Reserves vs policy	Fundraising cost	Going concern
INTERNATIONAL GAUCHER ALLIANCE	£258k	£70,001 - £80,000	1	above	—	noted
INTERNATIONAL ALLIANCE OF PATIENTS' ORGANIZATIONS FY2024	£595k	£60,001 - £70,000	1	within	—	no doubt
ILEOSTOMY AND INTERNAL POUCH ASSOCIATION FY2025	£343k	—	—	above	7.9%	no doubt
THE GEOGRAPHICAL ASSOCIATION FY2025	£1.2m	—	—	unclear	—	no doubt
Association of Upper Gastrointestinal Surgery of Great Britain and Ireland FY2025	£506k	£60,001 - £70,000	1	above	—	no doubt
GENETIC ALLIANCE UK LTD FY2025	£886k	—	—	above	12.0%	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.