MEDICS 4 RARE DISEASES
Medics for Rare Disease is raising awareness of the relevance of rare disease to medical practice in order to relieve sickness of those living with rare diseases. This is achieved through events, learning resources, linking medical professionals with patients and advocates, competitions and creating/promoting other opportunities for medics in the field of rare diseases.
Objects
THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH OF THOSE SUFFERING FROM RARE DISEASES, THROUGHOUT THE WORLD, BY:(A) ADVANCING THE EDUCATION OF MEDICS, ASSOCIATED PROFESSIONALS AND THE PUBLIC IN RARE DISEASES, GENETIC AND GENOMIC MEDICINE(B) PROMOTING RESEARCH IN ALL AREAS RELATING TO RARE DISEASES, GENETIC AND GENOMIC MEDICINE AND PUBLISHING THE USEFUL RESULTS(C) PROMOTING IMPROVED CARE AND TREATMENT OF THOSE SUFFERING FROM RARE DISEASES.
Financial health, per its FY2025 accounts
The charity reported a net expenditure of £81,719 for the year, resulting in total funds decreasing from £113,210 to £31,491. The trustees' reserves policy targets three months of unrestricted expenditure, and the current unrestricted reserves of £15,260 are below this target. The accounts state there are no material uncertainties regarding the charity's ability to continue.
What the accounts disclose
“Reserves are to be maintained at a level that ensures that the charity's core activity could continue during a 3 month period of unforeseen financial difficulty”
“Consulting fees of £210 (2024- £Nil) paid to Dan Jeffries who is trustees of charity.” — page 27
“Reimbursement of expenses amounting to £60 was paid to Dan Jeffries during the year (2024: £62).” — page 27
“Consulting fees of £210 (2024- £Nil) paid to Dan Jeffries who is trustees of charity.” — page 27
“Reimbursement of expenses amounting to £60 was paid to Dan Jeffries during the year (2024: £62).” — page 27
Policies the charity declares
- Bullying and harassment policy and procedures
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Safeguarding policy and procedures
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Trustees
- Emma Macleod
- Harriet Gordon-Brown
- Professor Russell Hearn
- Sheela Upadhyaya
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2025 | £206k | £288k |
| 31/12/2024 | £288k | £268k |
| 31/12/2023 | £260k | £229k |
| 31/12/2022 | £135k | £133k |
| 31/12/2021 | £101k | £75k |
Common questions
Is MEDICS 4 RARE DISEASES financially healthy?
Per its FY2025 accounts: The charity reported a net expenditure of £81,719 for the year, resulting in total funds decreasing from £113,210 to £31,491. The trustees' reserves policy targets three months of unrestricted expenditure, and the current unrestricted reserves of £15,260 are below this target. The accounts state there are no material uncertainties regarding the charity's ability to continue. Its FY2025 accounts were independently examined.
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE REED FOUNDATION | 1 | — |
| THE TOLKIEN TRUST | 1 | £130k |
| THE MCBAIN FAMILY FOUNDATION | 1 | £100k |
| Bird Song Trust | 1 | £79k |
| THE PATRICK & HELENA FROST FOUNDATION | 1 | £63k |
| THE VASEPPI TRUST | 1 | £60k |
| THE MARK ANTHONY TRUST | 1 | £30k |
| THE TRUE COLOURS TRUST | 1 | £6k |
Charities like this
- RAREMINDS CIO
- CAMBRIDGE RARE DISEASE NETWORK
- FESTIVAL MEDICAL SERVICES
- MEDICAL AID FILMS LIMITED
- CANCER 52
- MEDICAL RESEARCH FOUNDATION
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| MEDICS 4 RARE DISEASES | £206k | — | 0 | unclear | — | no doubt |
| RAREMINDS CIO | £397k | — | 0 | unclear | — | no doubt |
| CAMBRIDGE RARE DISEASE NETWORK | £143k | — | 0 | above | — | no doubt |
| FESTIVAL MEDICAL SERVICES | £661k | — | 0 | unclear | — | no doubt |
| MEDICAL AID FILMS LIMITED | £84k | Under £60,000 | 0 | unclear | — | no doubt |
| CANCER 52 | £363k | — | 0 | within | — | no doubt |