CAMBRIDGE RARE DISEASE NETWORK

Registered charity 1166365 · accounts filings on the Charity Commission register · also known as CRDN, CamRARE

CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.

Objects

To improve the quality of life for persons living with rare or undiagnosed conditions, their families, and caregivers, by fostering connections, building strong, supportive communities and providing and promoting inclusive support, advice, and information.To advance education and raise awareness of rare and undiagnosed conditions among the public, healthcare professionals and researchers, and to promote and support research into such conditions for the public benefit.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Registered contact address: South Cambridgeshire, East of England, England (from the postcode on the register)

Latest income

£143k

Latest spending

£193k

Registered

2016

Accounts read

FY2025

Financial health, per its FY2025 accounts

The charity reported a net expenditure of £49,804 for the year, resulting in a decrease in unrestricted reserves from £171,352 to £117,888. Despite this deficit, the trustees state the charity has adequate resources to continue as a going concern. The unrestricted reserves of £117,888 remain above the stated policy target of £80,000.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: £80,000 (approximately six months of operating costs) (reserves figure: £118k)

“The Board reviewed and updated the Reserves Policy, setting a target of £80,000 (approximately six months of operating costs) to ensure stability during the forthcoming leadership transition” — page 7

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

Bullying and harassment policy and procedures
Complaints handling
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Paying staff
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Self-declared on the annual return for the financial year ending 31/12/2025

Volunteers: 24

Self-declared on the annual return for the financial year ending 31/12/2024

Volunteers: 20

Self-declared on the annual return for the financial year ending 31/12/2023

Volunteers: 20
Trustee benefits, answered Yes to: any trustee benefit; payments to trustees for services to the charity

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Cambridge Rare Disease Network (matched by registered charity number).

Register events

Received assets from another charity (03/10/2026) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

Emma Greenchair
Billy Michael Lucas
Dr Catherine O'Sullivan
Loretta MacInnes
Ruth Diazaraque
Susan Berry
William Henry Waddington Eldridge

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/12/2025	£143k	£193k
31/12/2024	£182k	£232k
31/12/2023	£224k	£192k
31/12/2022	£141k	£123k
31/12/2021	£164k	£103k

Common questions

Is CAMBRIDGE RARE DISEASE NETWORK financially healthy?

Per its FY2025 accounts: The charity reported a net expenditure of £49,804 for the year, resulting in a decrease in unrestricted reserves from £171,352 to £117,888. Despite this deficit, the trustees state the charity has adequate resources to continue as a going concern. The unrestricted reserves of £117,888 remain above the stated policy target of £80,000. Its FY2025 accounts were independently examined.

Who funds CAMBRIDGE RARE DISEASE NETWORK?

Funders whose own accounts filings name CAMBRIDGE RARE DISEASE NETWORK as a grant recipient include THE TRUE COLOURS TRUST, THE COLE CHARITABLE TRUST.

Known funders

Grants to this charity found in funders’ own accounts filings.

Funder	Year	Amount	Purpose (as stated by the funder)
THE TRUE COLOURS TRUST	FY2025	£6k	Activities and support for disabled children and young people and their families
THE COLE CHARITABLE TRUST	FY2024	£1k	Children and Youth
THE COLE CHARITABLE TRUST	FY2023	£1k	Children and Youth

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
The National Lottery Community Fund	04/02/2020	£910	Rare Disease Day Celebration
The National Lottery Community Fund	16/09/2015	£10k	Cambridge Rare Disease Network Development Project

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Funder	Similar charities funded	Amount to them
CARERS TRUST	1	£600k
UNITED CHARITIES OF CAMBRIDGE	1	£88k
THE ORR MACKINTOSH FOUNDATION LIMITED	1	£25k
THE FREDERICK MULDER FOUNDATION	1	£24k
THE HAMPSTEAD WELLS AND CAMPDEN TRUST	1	£15k
THE BRITFORD BRIDGE TRUST	1	£10k
CAMDEN GIVING	1	£3k
CROSSROADS WOMEN	1	£2k

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with CAMCARE UK.

CAMCARE UK income £50k
CAMBRIDGE RE-USE income £180k
CAMBRIDGE ARTHRITIS RESEARCH ENDEAVOUR (CARE) income £78k
CAMBRIDGE AID income £135k
Camden Carers income £1.1m
CAMBRIDGESHIRE COMMUNITY SERVICES NHS TRUST CHARITABLE FUNDS income £88k

Side by side with its peers

Charity	Income	Top pay band	Reserves vs policy	Fundraising cost	Going concern
CAMBRIDGE RARE DISEASE NETWORK	£143k	—	unclear	—	no doubt
CAMCARE UK FY2025	£50k	—	unclear	—	no doubt
CAMBRIDGE RE-USE FY2025	£180k	—	unclear	—	no doubt
CAMBRIDGE ARTHRITIS RESEARCH ENDEAVOUR (CARE) FY2025	£78k	—	unclear	—	no doubt
CAMBRIDGE AID FY2025	£135k	—	unclear	—	no doubt
Camden Carers FY2025	£1.1m	—	below	—	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.