CAMBRIDGE RARE DISEASE NETWORK

Registered charity 1166365 · accounts filings on the Charity Commission register · also known as CRDN, CamRARE

CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income
£143k
Latest spending
£193k
Registered
2016
Accounts read
FY2024

Financial health, per its FY2024 accounts

The accounts state that the charity reported a net expenditure of £44,024 for the year, resulting in a decrease in total funds from £226,554 to £182,530. Per the trustees' report, unrestricted reserves of £171,352 remain above the stated policy target of three months of running costs, and the going concern basis is supported by adequate resources.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: none
“Income raised through corporate sponsorship for RAREfest24 and membership of our Companies Forum totalled £65,861 and donations and community fundraising totalled £12,682.”
Per its FY2024 accounts as filed with the Charity Commission.
Reserves policy: three months of running costs (held: £171k)
“The charity’s management team works to a policy whereby unrestricted funds not committed or invested in tangible fixed assets held by the charity should be a minimum of three months of running costs.” — page 9
Per its FY2024 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Cambridge Rare Disease Network (matched by registered charity number).

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/12/2025£143k£193k
31/12/2024£182k£232k
31/12/2023£224k£192k
31/12/2022£141k£123k
31/12/2021£164k£103k

Common questions

Is CAMBRIDGE RARE DISEASE NETWORK financially healthy?

Per its FY2024 accounts: The accounts state that the charity reported a net expenditure of £44,024 for the year, resulting in a decrease in total funds from £226,554 to £182,530. Per the trustees' report, unrestricted reserves of £171,352 remain above the stated policy target of three months of running costs, and the going concern basis is supported by adequate resources. Its FY2024 accounts were independently examined.

Who funds CAMBRIDGE RARE DISEASE NETWORK?

Funders whose own accounts filings name CAMBRIDGE RARE DISEASE NETWORK as a grant recipient include THE TRUE COLOURS TRUST, THE COLE CHARITABLE TRUST.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
THE TRUE COLOURS TRUSTFY2025£6kActivities and support for disabled children and young people and their families
THE COLE CHARITABLE TRUSTFY2024£1kChildren and Youth
THE COLE CHARITABLE TRUSTFY2023£1kChildren and Youth

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
The National Lottery Community Fund04/02/2020£910Rare Disease Day Celebration
The National Lottery Community Fund16/09/2015£10kCambridge Rare Disease Network Development Project

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MEDICS 4 RARE DISEASES.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
CAMBRIDGE RARE DISEASE NETWORK£143k—0above—no doubt
MEDICS 4 RARE DISEASES FY2024£288k—0unclear—no doubt
THE CAMERON FUND FY2025£430k—0below—no doubt
Cambridgeshire Deaf Association FY2025£1.4m£70,001 - £80,0001above—no doubt
CAMBRIDGE CYRENIANS LIMITED FY2025£1.7m—0within—no doubt
CAMBRIDGESHIRE COMMUNITY FOUNDATION FY2025£4.3m——below—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.