RING20 RESEARCH AND SUPPORT UK CIO

Registered charity 1165651 · accounts filings on the Charity Commission register · also registered in Scotland as SC048893 (OSCR)

We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity generated total income of £37,103 and incurred total expenditure of £35,758, resulting in a net surplus for the year. The trustees report that general reserves of £45,178 are held in cash, which exceeds the stated policy target of six months' operating costs, indicating strong operational stability.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Ring20 Research and Support UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

• Lydia Elena Hirstchair
• Dr Antonio Gil-Nagel
• Dr Sze-Man Clara Tang
• Kim Parks
• Tim Buckinx

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).