A RARE CAUSE
The objects of A Rare Cause (ARC) are the advancement of health or the saving of lives in relation to the global, rare disease community in particular by providing information and resources to raise knowledge and increase awareness.
Objects
THE OBJECTS OF THE CIO ARE THE ADVANCEMENT OF HEALTH OR THE SAVING OF LIVES IN RELATION TO THE GLOBAL RARE DISEASE COMMUNITY IN PARTICULAR BY PROVIDING INFORMATION AND RESOURCES TO RAISE KNOWLEDGE AND INCREASE AWARENESS.
Financial health, per its FY2025 accounts
The charity reported total income of £25,372, primarily from a grant by Direct Relief, against total expenditure of £2,007. It held unrestricted cash reserves of £23,485.49 at year-end, with the majority earmarked for the LSD-Impact programme. The trustees confirmed no material uncertainties regarding the charity's ability to continue as a going concern.
What the accounts disclose
“Total income for the period was £25,372 (2024: £120), principally a grant of £25,342 from Direct Relief together with £30 of donations.”
“The trustees aim to hold reserves sufficient to cover the charity's core running costs and committed programme spend, noting that the majority of funds held at the year end are earmarked for the LSD-Impact programme.”
Policies the charity declares
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Safeguarding policy and procedures
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/12/2025
- Volunteers: 2
- Grant-making is its main activity
Self-declared on the annual return for the financial year ending 31/12/2024
- Volunteers: 2
- Grant-making is its main activity
Self-declared on the annual return for the financial year ending 31/12/2023
- Volunteers: 2
- Grant-making is its main activity
Trustees
- Dr Dumebi Oderinde
- Linda Ebosie
- Prof Amaka Offiah
- Tiffany Wong
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2025 | £25k | £2k |
| 31/12/2024 | £120 | £0 |
| 31/12/2023 | £0 | £0 |
| 31/12/2022 | £0 | £0 |
Common questions
Is A RARE CAUSE financially healthy?
Per its FY2025 accounts: The charity reported total income of £25,372, primarily from a grant by Direct Relief, against total expenditure of £2,007. It held unrestricted cash reserves of £23,485.49 at year-end, with the majority earmarked for the LSD-Impact programme. The trustees confirmed no material uncertainties regarding the charity's ability to continue as a going concern. Its FY2025 accounts were independently examined.
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| CHILDREN WITH CANCER UK | 1 | £500k |
| COLLECTIVE FUTURES (CIO) | 1 | £95k |
| H C D MEMORIAL FUND | 1 | £50k |
| THE ALLEN OVERY SHEARMAN STERLING FOUNDATION | 1 | £47k |
| THE RANDAL CHARITABLE FOUNDATION | 1 | £20k |
| THE ANGUS LAWSON MEMORIAL TRUST | 1 | £10k |
| THE ARCHER TRUST | 1 | £3k |
| MOORE KINGSTON SMITH COMMUNITY FOUNDATION | 1 | £3k |
Charities like this
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| A RARE CAUSE | £25k | — | 0 | unclear | — | no doubt |
| ALICE'S ARC | £788k | — | 0 | above | — | no doubt |
| ONE CAUSE LIMITED | £162k | — | 0 | above | — | no doubt |
| THE ARC | £1.4m | — | 0 | unclear | — | no doubt |
| MAD-Aid | £433k | — | — | unclear | — | no doubt |
| THE ARK FAMILY RESOURCE CENTRE | £391k | — | 0 | below | — | noted |