THE INTERNATIONAL ALLIANCE OF ALS / MND ASSOCIATIONS
The International Alliance of ALS/MND Associations founded in November of 1992 to provide an international community for ALS/MND associations from around the world. Our vision is to engage our members, prospective members and other organizations in sharing resources globally, advancing awareness and supporting people with ALS/MND worldwide.
Financial health, per its FY2025 accounts
The accounts state that the charity reported a net expenditure of £37,641 for the year, resulting in unrestricted reserves of £75,337. The Directors are satisfied that the charity's financial position is adequate to fulfil its obligations, noting that the expenditure reflected generic inflationary increases without new grant types.
What the accounts disclose
“The number of officers who received emoluments over £60,000 was 0.5 in the range between £60,000 and £70,000.” — page 17
“Expenses were paid out of the funds of the charity to the CEO totalling £55,811. This amount consists of both operational expenses that were paid for on behalf of the Alliance, and reimbursement of travel and accommodation expenses incurred in the course of their duties.” — page 19
“Director expenses amounting to £4,606 were paid to five directors. This amount consists of reimbursements for registration fees for the Alliance’s internal conference, in line with the Alliance’s policy.” — page 15
“Expenses were paid out of the funds of the charity to the CEO totalling £55,811. This amount consists of both operational expenses that were paid for on behalf of the Alliance, and reimbursement of travel and accommodation expenses incurred in the course of their duties.” — page 19
“Director expenses amounting to £4,606 were paid to five directors. This amount consists of reimbursements for registration fees for the Alliance’s internal conference, in line with the Alliance’s policy.” — page 15
Year-over-year changes
- Employees paid over £60,000: 1 (FY2024) → 0 (FY2025).
Corporate structure
- Registered company of the charity Companies House 03739783
Company officers (Companies House)
- GERBINO, Valeria, Ms. on trustee list
- HJELLE, Jennifer Helen, Ms. on trustee list
- AQUINO, Pablo Agustin, Mr. on trustee list
- BARAKZAI, Nina Riffath, Ms. on trustee list
- ZUCCARINO, Riccardo on trustee list
- BENCH, Mary Ellen on trustee list
- REVIERS, Evy on trustee list
- SULLIVAN, Clare on trustee list
- BEDFORD, Jennifer on trustee list
- MOORE, Tammy Lynn on trustee list
- YAMADA, Yohei not on trustee list
- SANTOS, Marcela on trustee list
Structured financials (annual return, FY ending 30/06/2025)
Trustees
- Clare Sullivan
- Evy Reviers
- Jennifer Bedford
- Jennifer Hjelle
- Marcela Santos
- Mary Ellen Bench
- Nina Riffath Barakzai
- Pablo Aquino
- Riccardo Zuccarino
- Tammy Moore
- Valeria Gerbino
- Yohei Yomada
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 30/06/2025 | £700k | £737k |
| 30/06/2024 | £595k | £694k |
| 30/06/2023 | £634k | £586k |
| 30/06/2022 | £375k | £346k |
| 30/06/2021 | £164k | £228k |
Common questions
Is THE INTERNATIONAL ALLIANCE OF ALS / MND ASSOCIATIONS financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a net expenditure of £37,641 for the year, resulting in unrestricted reserves of £75,337. The Directors are satisfied that the charity's financial position is adequate to fulfil its obligations, noting that the expenditure reflected generic inflationary increases without new grant types. Its FY2025 accounts were independently examined.
What does the highest-paid employee of THE INTERNATIONAL ALLIANCE OF ALS / MND ASSOCIATIONS earn?
Per its FY2025 accounts, the highest-paid employee was in the £60,001 - £70,000 band.
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE HISCOX FOUNDATION | 3 | £53k |
| THE JONES 1986 CHARITABLE TRUST | 2 | £30k |
| THE SIR JAMES RECKITT CHARITY | 2 | £27k |
| CHARLES S FRENCH CHARITABLE TRUST | 2 | £12k |
| THE OAKDALE TRUST | 2 | £4k |
| THE EIGHTY EIGHT FOUNDATION | 1 | — |
| ALAN DAVIDSON FOUNDATION | 1 | £612k |
| THE THOMPSON FAMILY CHARITABLE TRUST | 1 | £600k |
Charities like this
- MOTOR NEURONE DISEASE ASSOCIATION
- CHALLENGING MND
- STAND AGAINST MND
- THE DARBY RIMMER MND FOUNDATION
- THE NEUROLOGICAL ALLIANCE
- TREAT-NMD ALLIANCE LTD
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| THE INTERNATIONAL ALLIANCE OF ALS / MND ASSOCIATIONS | £700k | £60,001 - £70,000 | 0 | unclear | — | no doubt |
| MOTOR NEURONE DISEASE ASSOCIATION | £40.8m | £140,000 - £149,999 | — | unclear | 14.8% | no doubt |
| CHALLENGING MND | £503k | — | 0 | unclear | — | no doubt |
| STAND AGAINST MND | £121k | — | 0 | unclear | — | no doubt |
| THE DARBY RIMMER MND FOUNDATION | £709k | — | 0 | above | — | no doubt |
| THE NEUROLOGICAL ALLIANCE | £297k | £70,001 - £80,000 | 1 | below | — | no doubt |