TREAT-NMD ALLIANCE LTD

Registered charity 1200765 · accounts filings on the Charity Commission register

Treat NMD exists to accelerate treatments to patients with neuromuscular disease, by engaging withpatient advocacy groups, researchers, clinicians, industry and regulators to advance treatments and sharebest practice.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Latest income
£2.5m
Latest spending
£2.5m
Registered
2022
Accounts read
FY2024

Financial health, per its FY2024 accounts

The accounts state that the group reported a net movement in funds of £(39,364) for the year, resulting in total unrestricted reserves of £837,146. The trustees confirm that the group has adequate resources to continue in operational existence for the foreseeable future, with no material uncertainties identified regarding going concern. The charity's own reserves policy is described as building levels to support objectives, with current reserves standing at £9,643 for the parent charity.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: Other trading activities
“Other trading activities 5 1,999,150”
Per its FY2024 accounts as filed with the Charity Commission.
Reserves policy: building levels to support the charity’s objectives (held: £837k)
“The reserves policy for TREAT-NMD Alliance Limited continues to be building levels to support the charity’s objectives.” — page 7
Per its FY2024 accounts as filed with the Charity Commission.
Related-party transaction: Honorarium paid to trustee J Dowling for TACT meetings
“During the year honorarium payments totalling £734 (2023: £1,500) were paid to J Dowling, trustee, for attendance at TACT meetings.” — page 33
“During the year, payments of £27,232 (2023: £18,666) were paid to Muscular Dystrophy Association USA, a charity in which S Hesterlee has signifcant influence, in relation to a gene therapy masterclass.” — page 33
Per its FY2024 accounts as filed with the Charity Commission.
Related-party transaction: Payments to Muscular Dystrophy Association USA (charity where S Hesterlee has significant influence)
“During the year honorarium payments totalling £734 (2023: £1,500) were paid to J Dowling, trustee, for attendance at TACT meetings.” — page 33
“During the year, payments of £27,232 (2023: £18,666) were paid to Muscular Dystrophy Association USA, a charity in which S Hesterlee has signifcant influence, in relation to a gene therapy masterclass.” — page 33
Per its FY2024 accounts as filed with the Charity Commission.
Related-party transaction: Payments to Newcastle University (organisation with significant influence)
“During the year honorarium payments totalling £734 (2023: £1,500) were paid to J Dowling, trustee, for attendance at TACT meetings.” — page 33
“During the year, payments of £27,232 (2023: £18,666) were paid to Muscular Dystrophy Association USA, a charity in which S Hesterlee has signifcant influence, in relation to a gene therapy masterclass.” — page 33
Per its FY2024 accounts as filed with the Charity Commission.
Related-party transaction: Payments to World Muscle Society (where V Straub has significant influence)
“During the year honorarium payments totalling £734 (2023: £1,500) were paid to J Dowling, trustee, for attendance at TACT meetings.” — page 33
“During the year, payments of £27,232 (2023: £18,666) were paid to Muscular Dystrophy Association USA, a charity in which S Hesterlee has signifcant influence, in relation to a gene therapy masterclass.” — page 33
Per its FY2024 accounts as filed with the Charity Commission.
Related-party transaction: Honorarium paid to trustee A De Luca for TACT meetings
“During the year honorarium payments totalling £734 (2023: £1,500) were paid to J Dowling, trustee, for attendance at TACT meetings.” — page 33
“During the year, payments of £27,232 (2023: £18,666) were paid to Muscular Dystrophy Association USA, a charity in which S Hesterlee has signifcant influence, in relation to a gene therapy masterclass.” — page 33
Per its FY2024 accounts as filed with the Charity Commission.

Accounts audited by UNW LLP. Discloses 4 of 6 completeness components.

Corporate structure

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

Official officers record.

Structured financials (annual return, FY ending 31/07/2024)

Total income
£2.5m
Total spending
£2.5m
Cost of raising funds
£2.3m
Reserves (reported)
£837k
Employees
19

Reported reserves equal ~4.0 months of spending — below the median for charities its size (median 4.8 months; benchmarks).

Per its annual return, largest income source: Other trading activities (81% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 91.4% of total income — above the 90th percentile for charities its size (median 5.2%) (benchmarks).

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/07/2024£2.5m£2.5m
31/07/2023£2.2m£1.9m

Common questions

Is TREAT-NMD ALLIANCE LTD financially healthy?

Per its FY2024 accounts: The accounts state that the group reported a net movement in funds of £(39,364) for the year, resulting in total unrestricted reserves of £837,146. The trustees confirm that the group has adequate resources to continue in operational existence for the foreseeable future, with no material uncertainties identified regarding going concern. The charity's own reserves policy is described as building levels to support objectives, with current reserves standing at £9,643 for the parent charity. Its FY2024 accounts were audited by UNW LLP.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE NEUROLOGICAL ALLIANCE.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
TREAT-NMD ALLIANCE LTD£2.5m——unclear—no doubt
THE NEUROLOGICAL ALLIANCE FY2025£297k£70,001 - £80,0001below—no doubt
MYOTUBULAR TRUST FY2025£147k£20,0000unclear—no doubt
Spinal Muscular Atrophy UK FY2025£1.6m—0above—no doubt
NEUROMUSCULAR CENTRE FY2025£1.4m—0unclear—no doubt
MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND FY2025£7.9m——unclear40.4%no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.