THE SICKLE CELL SOCIETY

Registered charity 1046631 · accounts filings on the Charity Commission register

Information, counselling, caring and advocacy support for those with sickle cell disorders and their families.

Objects

THE CHARITY’S OBJECTS (“OBJECTS”) ARE:(1) THE RELIEF OF PERSONS LIVING WITH SICKLE CELL DISEASE;(2) THE RELIEF OF POVERTY AMONG MEMBERS OF THE IMMEDIATE FAMILY OF PERSONS WHO ARE SUFFERING, OR WHO, IMMEDIATELY BEFORE THEIR DEATH, SUFFERED FROM SICKLE CELL DISEASE;(3) THE PROVISION OF FACILITIES FOR RECREATION OR OTHER LEISURE TIME OCCUPATION FOR SUCH PERSONS AND FOR SUCH IMMEDIATE MEMBERS OF THEIR FAMILIES HAVING NEED OF SUCH FACILITIES BY REASON OF THEIR YOUTH, AGE, INFIRMITY, OR DISABLEMENT, POVERTY OR SOCIAL ECONOMIC CIRCUMSTANCES WITH THE OBJECT OF IMPROVING THE CONDITIONS OF LIFE FOR SUCH PERSONS;(4) TO ADVANCE PUBLIC EDUCATION IN SICKLE CELL DISEASE BY CARRYING OUT OR ASSISTING IN CARRYING OUT RESEARCH INTO THE CAUSES, EFFECTS AND TREATMENT OF SICKLE CELL DISEASE AND TO DISSEMINATE USEFUL RESULTS OF SUCH RESEARCH.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · The Prevention Or Relief Of Poverty · Arts/culture/heritage/science · Amateur Sport · website · Get email alerts

Registered contact address: Brent, London, England (from the postcode on the register)

Latest income
£1.2m
Latest spending
£1.2m
Registered
1995
Accounts read
FY2026

Financial health, per its FY2026 accounts

The Sickle Cell Society reported a small surplus of £141 for the year ended 31 March 2026, with total income of £1,181,362 and total expenditure of £1,181,221. The charity holds free unrestricted reserves of £868,574, which exceeds its stated policy target of maintaining three months of unrestricted expenditure (£181,210). The accounts were prepared on a going concern basis with no material uncertainties identified by the auditors.

Automated summary of the FY2026 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Highest-paid employee band: more than £60,000 — below the median for charities its size (£70k)
“One employee earned more than £60,000 per annum (2025: None).” — page 38
Per its FY2026 accounts as filed with the Charity Commission.
Employees paid over £60,000: 1
“One employee earned more than £60,000 per annum (2025: None).” — page 38
Per its FY2026 accounts as filed with the Charity Commission.
Reserves policy: maintaining a minimum of three months of the Society's total unrestricted expenditure (reserves figure: £869k)
“The Trustees of the Sickle Cell Society have set a free reserves policy (which represents total unrestricted funds less tangible fixed assets) of maintaining a minimum of three months of the Society's total unrestricted expenditure which was £181,210 on 31 March 2026.” — page 24
Per its FY2026 accounts as filed with the Charity Commission.
Related-party transaction: Remuneration paid to Lanre Ogundimu for professional services
“Remuneration of £1,188 (2025: £1,494) was paid to Lanre Ogundimu for professional services carried out with the South East London Mentoring Project, offering mentoring services to Children and Young people in the region. Her position as a Mentor was discussed with the Board of Trustees, including checking that there was no conflict of interest.” — page 38
“£nil (2025: £4,485) was also paid to Zainab Garba-Sani relating to remuneration from Genomics (Co-chair Patient Advisory and attending Sickle working group) £375 (2025: £450) was paid to Zainab Garba-Sani. This amount relates to remuneration from the NHS (Attending the Sickle Cell Patient Advisory Group).” — page 38
Per its FY2026 accounts as filed with the Charity Commission.
Related-party transaction: Remuneration paid to Zainab Garba-Sani
“Remuneration of £1,188 (2025: £1,494) was paid to Lanre Ogundimu for professional services carried out with the South East London Mentoring Project, offering mentoring services to Children and Young people in the region. Her position as a Mentor was discussed with the Board of Trustees, including checking that there was no conflict of interest.” — page 38
“£nil (2025: £4,485) was also paid to Zainab Garba-Sani relating to remuneration from Genomics (Co-chair Patient Advisory and attending Sickle working group) £375 (2025: £450) was paid to Zainab Garba-Sani. This amount relates to remuneration from the NHS (Attending the Sickle Cell Patient Advisory Group).” — page 38
Per its FY2026 accounts as filed with the Charity Commission.

Accounts audited by Goodman Jones LLP. Discloses 6 of 6 completeness components.

Year-over-year changes

Comparing this charity’s FY2025 and FY2026 accounts as analysed by this site.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Self-declared on the annual return for the financial year ending 31/03/2026

  • Volunteers: 67
  • Employees paid over £60,000: 1 (£60,001–£70,000: 1)
  • Trustee benefits, answered Yes to: any trustee benefit; payments to trustees for services to the charity; other trustee benefit

Self-declared on the annual return for the financial year ending 31/03/2025

  • Volunteers: 53
  • Government income: £763,772 — contracts £310,663 (4), grants £453,109 (4); 54% of the £1,426,839 total gross income on the same return
  • Trustee benefits, answered Yes to: any trustee benefit

Self-declared on the annual return for the financial year ending 31/03/2024

  • Volunteers: 30
  • Government income: £275,555 — contracts £137,858 (1), grants £137,697 (5); 28% of the £992,499 total gross income on the same return

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — The Sickle Cell Society (matched by registered charity number).

Property (HM Land Registry)

1 registered title in England and Wales held by the charity’s company or corporate body (0 freehold). All charity-held property. Contains HM Land Registry data © Crown copyright, OGL v3.0.

Structured financials (annual return, FY ending 31/03/2026)

Total income
£1.2m
Total spending
£1.2m
Cost of raising funds
£185k
Reserves (reported)
£869k
Employees
16

Reported reserves equal ~8.8 months of spending — above the median for charities its size (median 4.7 months; benchmarks).

Per its annual return, largest income source: Donations and legacies (37% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 15.7% of total income — above the median for charities its size (5.3%) (benchmarks).

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2026£1.2m£1.2m
31/03/2025£1.4m£1.1m
31/03/2024£992k£727k
31/03/2023£774k£644k
31/03/2022£872k£677k

Common questions

Is THE SICKLE CELL SOCIETY financially healthy?

Per its FY2026 accounts: The Sickle Cell Society reported a small surplus of £141 for the year ended 31 March 2026, with total income of £1,181,362 and total expenditure of £1,181,221. The charity holds free unrestricted reserves of £868,574, which exceeds its stated policy target of maintaining three months of unrestricted expenditure (£181,210). The accounts were prepared on a going concern basis with no material uncertainties identified by the auditors. Its FY2026 accounts were audited by Goodman Jones LLP.

What does the highest-paid employee of THE SICKLE CELL SOCIETY earn?

Per its FY2026 accounts, the highest-paid employee was in the more than £60,000 band, and 1 employees earned over £60,000.

Who funds THE SICKLE CELL SOCIETY?

Funders whose own accounts filings name THE SICKLE CELL SOCIETY as a grant recipient include THE BARBARA WARD CHILDREN'S FOUNDATION, CHARLES S FRENCH CHARITABLE TRUST, THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST JOHN WITH ST JAMES AND ST PAUL PLUMSTEAD.

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
UK government29/09/2020£37kCoronavirus Community Support Fund
London Borough of Hackney28/10/2019£42kGrant to The Sickle Cell Society
Hackney Council28/10/2019£42kGrant to The Sickle Cell Society
The National Lottery Heritage Fund29/03/2019£81k"Sickle Cell Disease in the UK: 1950 to the present day"
The National Lottery Community Fund23/03/2016£281kSickle Cell Link South London
The National Lottery Community Fund27/03/2013£10kResidential holiday for children living with Sickle Cell Disease
The National Lottery Community Fund05/10/2008£8kThe Sickle Cell Disease Detector (SCADD) Project

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with THE MACULAR DISEASE SOCIETY.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
THE SICKLE CELL SOCIETY£1.2mmore than £60,0001above—no doubt
THE MACULAR DISEASE SOCIETY FY2025£8.9m——above—no doubt
CROYDON SICKLE CELL AND THALASSAEMIA SUPPORT GROUP FY2025£26k—0unclear—no doubt
SICKLE CELL CARE MANCHESTER FY2025£88.9m—0unclear—no doubt
CdLS Foundation UK & Ireland FY2025£54k—0above—no doubt
THE CELLAR SHOP FY2025£44k—0unclear—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.