THE SICKLE CELL SOCIETY
Information, counselling, caring and advocacy support for those with sickle cell disorders and their families.
Objects
THE CHARITY’S OBJECTS (“OBJECTS”) ARE:(1) THE RELIEF OF PERSONS LIVING WITH SICKLE CELL DISEASE;(2) THE RELIEF OF POVERTY AMONG MEMBERS OF THE IMMEDIATE FAMILY OF PERSONS WHO ARE SUFFERING, OR WHO, IMMEDIATELY BEFORE THEIR DEATH, SUFFERED FROM SICKLE CELL DISEASE;(3) THE PROVISION OF FACILITIES FOR RECREATION OR OTHER LEISURE TIME OCCUPATION FOR SUCH PERSONS AND FOR SUCH IMMEDIATE MEMBERS OF THEIR FAMILIES HAVING NEED OF SUCH FACILITIES BY REASON OF THEIR YOUTH, AGE, INFIRMITY, OR DISABLEMENT, POVERTY OR SOCIAL ECONOMIC CIRCUMSTANCES WITH THE OBJECT OF IMPROVING THE CONDITIONS OF LIFE FOR SUCH PERSONS;(4) TO ADVANCE PUBLIC EDUCATION IN SICKLE CELL DISEASE BY CARRYING OUT OR ASSISTING IN CARRYING OUT RESEARCH INTO THE CAUSES, EFFECTS AND TREATMENT OF SICKLE CELL DISEASE AND TO DISSEMINATE USEFUL RESULTS OF SUCH RESEARCH.
Financial health, per its FY2026 accounts
The Sickle Cell Society reported a small surplus of £141 for the year ended 31 March 2026, with total income of £1,181,362 and total expenditure of £1,181,221. The charity holds free unrestricted reserves of £868,574, which exceeds its stated policy target of maintaining three months of unrestricted expenditure (£181,210). The accounts were prepared on a going concern basis with no material uncertainties identified by the auditors.
What the accounts disclose
“One employee earned more than £60,000 per annum (2025: None).” — page 38
“One employee earned more than £60,000 per annum (2025: None).” — page 38
“The Trustees of the Sickle Cell Society have set a free reserves policy (which represents total unrestricted funds less tangible fixed assets) of maintaining a minimum of three months of the Society's total unrestricted expenditure which was £181,210 on 31 March 2026.” — page 24
“Remuneration of £1,188 (2025: £1,494) was paid to Lanre Ogundimu for professional services carried out with the South East London Mentoring Project, offering mentoring services to Children and Young people in the region. Her position as a Mentor was discussed with the Board of Trustees, including checking that there was no conflict of interest.” — page 38
“£nil (2025: £4,485) was also paid to Zainab Garba-Sani relating to remuneration from Genomics (Co-chair Patient Advisory and attending Sickle working group) £375 (2025: £450) was paid to Zainab Garba-Sani. This amount relates to remuneration from the NHS (Attending the Sickle Cell Patient Advisory Group).” — page 38
“Remuneration of £1,188 (2025: £1,494) was paid to Lanre Ogundimu for professional services carried out with the South East London Mentoring Project, offering mentoring services to Children and Young people in the region. Her position as a Mentor was discussed with the Board of Trustees, including checking that there was no conflict of interest.” — page 38
“£nil (2025: £4,485) was also paid to Zainab Garba-Sani relating to remuneration from Genomics (Co-chair Patient Advisory and attending Sickle working group) £375 (2025: £450) was paid to Zainab Garba-Sani. This amount relates to remuneration from the NHS (Attending the Sickle Cell Patient Advisory Group).” — page 38
Year-over-year changes
- Employees paid over £60,000: 0 (FY2025) → 1 (FY2026).
Policies the charity declares
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints handling
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/03/2026
- Volunteers: 67
- Employees paid over £60,000: 1 (£60,001–£70,000: 1)
- Trustee benefits, answered Yes to: any trustee benefit; payments to trustees for services to the charity; other trustee benefit
Self-declared on the annual return for the financial year ending 31/03/2025
- Volunteers: 53
- Government income: £763,772 — contracts £310,663 (4), grants £453,109 (4); 54% of the £1,426,839 total gross income on the same return
- Trustee benefits, answered Yes to: any trustee benefit
Self-declared on the annual return for the financial year ending 31/03/2024
- Volunteers: 30
- Government income: £275,555 — contracts £137,858 (1), grants £137,697 (5); 28% of the £992,499 total gross income on the same return
Property (HM Land Registry)
Structured financials (annual return, FY ending 31/03/2026)
Register events
- Received assets from another charity (17/10/2025)
- Received assets from another charity (07/05/2025)
- Received assets from another charity (11/02/2025)
Trustees
- Claudette Allerdyce
- Dr Kilali Basoene Ominu-Evbota
- Dr Matthew Sowemino
- Julia McLarty
- Lisett Brown
- Lorraine Mattis
- Vinice Thomas
- Zainab Garba-Sani
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2026 | £1.2m | £1.2m |
| 31/03/2025 | £1.4m | £1.1m |
| 31/03/2024 | £992k | £727k |
| 31/03/2023 | £774k | £644k |
| 31/03/2022 | £872k | £677k |
Common questions
Is THE SICKLE CELL SOCIETY financially healthy?
Per its FY2026 accounts: The Sickle Cell Society reported a small surplus of £141 for the year ended 31 March 2026, with total income of £1,181,362 and total expenditure of £1,181,221. The charity holds free unrestricted reserves of £868,574, which exceeds its stated policy target of maintaining three months of unrestricted expenditure (£181,210). The accounts were prepared on a going concern basis with no material uncertainties identified by the auditors. Its FY2026 accounts were audited by Goodman Jones LLP.
What does the highest-paid employee of THE SICKLE CELL SOCIETY earn?
Per its FY2026 accounts, the highest-paid employee was in the more than £60,000 band, and 1 employees earned over £60,000.
Who funds THE SICKLE CELL SOCIETY?
Funders whose own accounts filings name THE SICKLE CELL SOCIETY as a grant recipient include THE BARBARA WARD CHILDREN'S FOUNDATION, CHARLES S FRENCH CHARITABLE TRUST, THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST JOHN WITH ST JAMES AND ST PAUL PLUMSTEAD.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| THE BARBARA WARD CHILDREN'S FOUNDATION | FY2025 | £5k | |
| CHARLES S FRENCH CHARITABLE TRUST | FY2025 | £4k | |
| THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST JOHN WITH ST JAMES AND ST PAUL PLUMSTEAD | FY2023 | £200 | |
| THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ST JOHN WITH ST JAMES AND ST PAUL PLUMSTEAD | FY2025 | £200 | Donations and gifts |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| UK government | 29/09/2020 | £37k | Coronavirus Community Support Fund |
| London Borough of Hackney | 28/10/2019 | £42k | Grant to The Sickle Cell Society |
| Hackney Council | 28/10/2019 | £42k | Grant to The Sickle Cell Society |
| The National Lottery Heritage Fund | 29/03/2019 | £81k | "Sickle Cell Disease in the UK: 1950 to the present day" |
| The National Lottery Community Fund | 23/03/2016 | £281k | Sickle Cell Link South London |
| The National Lottery Community Fund | 27/03/2013 | £10k | Residential holiday for children living with Sickle Cell Disease |
| The National Lottery Community Fund | 05/10/2008 | £8k | The Sickle Cell Disease Detector (SCADD) Project |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE FORRESTER FAMILY TRUST | 2 | £13k |
| THE ANNIE TRANMER CHARITABLE TRUST | 2 | £5k |
| THE ALBERT GUBAY CHARITABLE FOUNDATION | 1 | £378k |
| ROBERT LUFF FOUNDATION LIMITED | 1 | £170k |
| THE LINBURY TRUST | 1 | £125k |
| THE HEARN FOUNDATION | 1 | £100k |
| DELVES CHARITABLE TRUST | 1 | £65k |
| THE HAREBELL CENTENARY FUND | 1 | £50k |
Charities like this
- THE MACULAR DISEASE SOCIETY
- CROYDON SICKLE CELL AND THALASSAEMIA SUPPORT GROUP
- SICKLE CELL CARE MANCHESTER
- CdLS Foundation UK & Ireland
- THE CELLAR SHOP
- THE ISLES OF SCILLY MEDICAL CENTRE TRUST
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| THE SICKLE CELL SOCIETY | £1.2m | more than £60,000 | 1 | above | — | no doubt |
| THE MACULAR DISEASE SOCIETY | £8.9m | — | — | above | — | no doubt |
| CROYDON SICKLE CELL AND THALASSAEMIA SUPPORT GROUP | £26k | — | 0 | unclear | — | no doubt |
| SICKLE CELL CARE MANCHESTER | £88.9m | — | 0 | unclear | — | no doubt |
| CdLS Foundation UK & Ireland | £54k | — | 0 | above | — | no doubt |
| THE CELLAR SHOP | £44k | — | 0 | unclear | — | no doubt |