THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST
Established in 1897 the National Centre for Young People with Epilepsy is a national charity that is the UK's major provider of services to children and young people with epilepsy and associated learning, emotional and behavioural difficulties. The Trading Name, Young Epilepsy, launched in Nov 2011, reflects our ambition to reach as many of the 112,700 young people with epilepsy, as possible.
Objects
THE OBJECTS OF THE CHARITY ARE, FOR THE PUBLIC BENEFIT:(1) THE ADVANCEMENT OF EDUCATION BY THE PROVISION OF A SPECIAL SCHOOL WITHIN THE MEANING OF THE EDUCATION ACTS AND A COLLEGE FOR FURTHER EDUCATION TO FURTHER THE EDUCATION OF CHILDREN AND YOUNG PEOPLE WITH SPECIAL EDUCATIONAL NEEDS SUPPORTING THEM TO BETTER REACH THEIR POTENTIAL; (2) TO ADVANCE THE EDUCATION OF THE WIDER PUBLIC AND PROFESSIONALS REGARDING EPILEPSY, IN PARTICULAR HEALTH AND EDUCATION BODIES AND AGENCIES, ABOUT THE PHYSICAL, SOCIAL, EMOTIONAL AND MENTAL HEALTH EFFECTS EXPERIENCED BY CHILDREN AND YOUNG PEOPLE LIVING WITH EPILEPSY, WITH A FOCUS ON THE CAUSES, ADVANCING BETTER TREATMENT AND THE ALLEVIATION OF IMPACT THEREOF THROUGH THE PROMOTION OF RESEARCH, ADVOCACY, AWARENESS RAISING AND THE PROVISION OF INFORMATION AND TRAINING; AND(3) THE RELIEF OF NEED OF CHILDREN, YOUNG PEOPLE, THEIR CAREGIVERS AND FAMILIES WHO ARE EXPERIENCING OR ARE AFFECTED BY EPILEPSY AND ASSOCIATED NEUROLOGICAL CONDITIONS THROUGH THE DEVELOPMENT AND DELIVERY OF EDUCATION, CARE AND SUPPORT, INCLUDING THROUGH BRINGING YOUNG PEOPLE TOGETHER TO CREATE A COMMUNITY OF SUPPORT.
Financial health, per its FY2025 accounts
The accounts state that the charity reported a net surplus of £0.3m for the year ended 31 July 2025, driven by increased fees from local authorities and growth in fundraising income. Free reserves stood at £5.0m, a significant increase from £0.1m the previous year, largely due to proceeds from a land sale, though the trustees note that excluding these proceeds, free reserves would be £0.7m, which aligns with their reserves policy. The charity relies substantially on local authority contracts for its income and has confirmed it has sufficient resources to continue as a going concern for at least 12 months.
What the accounts disclose
“The annual benchmark for free reserves is established during the Board’s approval of the budget. It is derived from stress testing the budget to ascertain a worst-case scenario, forming the foundation for determining the free reserves target set at £1.1m.” — page 26
“The current pension scheme deficit of £3.7m (2024: £4.7m), calculated in accordance with the requirements of Section 28 of FRS 102, is shown as a liability against unrestricted funds.”
“Young Epilepsy had one wholly owned subsidiary trading company in the group, which is St Piers (Services) Limited (Company registration number 04131530).” — page 25
Insolvency history (Companies House)
Policies the charity declares
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/07/2025
- Volunteers: 17
- Government income: £24,486,845 — contracts £24,147,845 (31), grants £339,000 (13); 87% of the £28,167,000 total gross income on the same return
- Employees paid over £60,000: 21 (£60,001–£70,000: 8; £70,001–£80,000: 7; £80,001–£90,000: 1; £90,001–£100,000: 1; £100,001–£110,000: 1; £110,001–£120,000: 3)
Self-declared on the annual return for the financial year ending 31/07/2024
- Volunteers: 3
- Government income: £19,929,391 — contracts £19,652,391 (36), grants £277,000 (13); 79% of the £25,101,000 total gross income on the same return
- Employees paid over £60,000: 17 (£60,001–£70,000: 10; £70,001–£80,000: 2; £90,001–£100,000: 2; £100,001–£110,000: 2; £110,001–£120,000: 1)
Self-declared on the annual return for the financial year ending 31/07/2023
- Volunteers: 202
- Government income: £20,579,000 — contracts £20,355,000 (44), grants £224,000 (13); 93% of the £22,193,000 total gross income on the same return
- Employees paid over £60,000: 17 (£60,001–£70,000: 9; £70,001–£80,000: 3; £80,001–£90,000: 2; £100,001–£110,000: 1; £110,001–£120,000: 1; £120,001–£130,000: 1)
- Has a trading subsidiary
In the news
Corporate structure
- Registered company of the charity Companies House 00756798
- Trading subsidiary: ST PIERS (SERVICES) LIMITED Companies House 04131530 · Financial health read from its filings
- Profit before tax: £-1.7m
Leadership, per the charity’s website
- Mark Devlin — CEO
Funders the charity credits
- National Lottery Reaching Communities Fund
- Bernard Lewis Family Charitable Trust
- George E Neville Foundation
- The Millie Community
- Ottolenghi
- Veronica Beard
Company officers (Companies House)
- RUETIMANN, Markus Hardy not on trustee list
- RODRIGUES, Maria not on trustee list
- TAILOR, Ash not on trustee list
- HADLEY, Thomas Fovargue not on trustee list
- PIERPOINT, David Julian not on trustee list
- BALI, Amit, Dr not on trustee list
- NEVILLE, Simon Andrew not on trustee list
- JONES, Tamsin Carole not on trustee list
- AL-KHALILI, Nazar
Structured financials (annual return, FY ending 31/07/2025)
Trustees
- THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/07/2025 | £28.2m | £27.9m |
| 31/07/2024 | £25.1m | £25.4m |
| 31/07/2023 | £22.2m | £24.0m |
| 31/07/2022 | £22.8m | £23.4m |
| 31/07/2021 | £24.5m | £24.8m |
Common questions
Is THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a net surplus of £0.3m for the year ended 31 July 2025, driven by increased fees from local authorities and growth in fundraising income. Free reserves stood at £5.0m, a significant increase from £0.1m the previous year, largely due to proceeds from a land sale, though the trustees note that excluding these proceeds, free reserves would be £0.7m, which aligns with their reserves policy. The charity relies substantially on local authority contracts for its income and has confirmed it has sufficient resources to continue as a going concern for at least 12 months. Its FY2025 accounts were audited by Crowe U.K. LLP.
Who funds THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST?
Funders whose own accounts filings name THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST as a grant recipient include BERNARD LEWIS FAMILY CHARITABLE TRUST, THE FIDELITY UK FOUNDATION, CARETECH CHARITABLE FOUNDATION, THE WESTMINSTER FOUNDATION, PETER HARRISON FOUNDATION.
Known funders
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| City Bridge Foundation | 10/03/2025 | £49k | Grant to Young Epilepsy [Operating Name of The National Centre for Young People with Epilepsy] |
| City Bridge Foundation | 14/07/2023 | £96k | Grant to Young Epilepsy [Operating Name of The National Centre for Young People with Epilepsy] |
| The National Lottery Community Fund | 01/08/2022 | £375k | Support and Inclusion for Children and Young People with Epilepsy |
| The National Lottery Community Fund | 08/04/2015 | £436k | Connect |
| City Bridge Foundation | 28/11/2013 | £73k | Grant to Young Epilepsy [Operating Name of The National Centre for Young People with Epilepsy] |
| The National Lottery Community Fund | 05/05/2011 | £10k | NCYPE Pirate Playground |
| The National Lottery Community Fund | 15/07/2010 | £235k | Epilepsy Education for schools |
| The National Lottery Community Fund | 04/05/2004 | £31k | Organisational development and recruitment of a Volunteer Development Offic |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE KIRBY LAING FOUNDATION | 1 | £500k |
| DAVID PEARLMAN CHARITABLE FOUNDATION | 1 | £167k |
| JOHN ELLERMAN FOUNDATION | 1 | £150k |
| The Portal Trust | 1 | £80k |
| MARIA BJORNSON MEMORIAL FUND | 1 | £15k |
| THE RANDAL CHARITABLE FOUNDATION | 1 | £15k |
| ST OLAVE'S & ST SAVIOUR'S SCHOOLS FOUNDATION CIO | 1 | £10k |
| THE MILLBY FOUNDATION | 1 | £10k |
Charities like this
- HOPE for Epilepsy
- EPILEPSY SOCIETY
- NATIONAL YOUTH FOLK TROUPE OF ENGLAND
- YOUNG PERSONS CENTRE
- THE NATIONAL YOUTH THEATRE OF GREAT BRITAIN
- THE ASSOCIATION FOR YOUNG PEOPLE'S HEALTH
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| THE NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY CHARITABLE TRUST | £28.2m | — | — | unclear | — | no doubt |
| HOPE for Epilepsy | £62k | — | 0 | unclear | — | no doubt |
| EPILEPSY SOCIETY | £20.7m | — | — | unclear | — | no doubt |
| NATIONAL YOUTH FOLK TROUPE OF ENGLAND | £33k | — | 0 | unclear | — | no doubt |
| YOUNG PERSONS CENTRE | £525k | — | 0 | unclear | — | no doubt |
| THE NATIONAL YOUTH THEATRE OF GREAT BRITAIN | £4.0m | — | — | within | — | no doubt |