WILLIAMS SYNDROME FOUNDATION LIMITED
Registered charity 281014 · accounts filings on the Charity Commission register · also known as THE INFANTILE HYPERCALCAEMIA FOUNDATION LIMITED · also registered in Scotland as SC049897 (OSCR)
The Williams Syndrome Foundation, founded in 1980, is run for parents by parents with the aim of providing information and support to for people with WS, and those who love, care for and educate them. We fund research into WS to inform and update our guidelines, webinars and publications. We provide opportunities for families to meet and share peer support, online and in person, across the UK.
Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts
Financial health, per its FY2025 accounts
The accounts state that unrestricted reserves stood at £451,479 at the year end, with free reserves of £27,531 considered adequate to support planned activities and the next triennial convention. The Trustees consider the financial position to be stable and satisfactory, noting that most income is raised through membership donations and fundraising.
Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Largest income source: none
“We are extremely fortunate that the majority of our income continues to be raised by our membership through donations and fundraising activity – they have our continued gratitude.” — page 9
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: one year's expenses, plus the current year's expenses (held: £451k)
“The charity aims to maintain reserves sufficient to cover a minimum of one year's expenses, plus the current year's expenses.” — page 10
Per its FY2025 accounts as filed with the Charity Commission.
Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.
Public fundraising profile: JustGiving — Williams Syndrome Foundation (matched by registered charity number).
Public profiles (found on the charity’s own website): facebook · instagram
Register events
- Received assets from another charity (20/02/2017) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Paul Richard Lawriechair
- BETHAN VASEY
- Dr Michael John Wolfman
- Dr Paul Francis Heery
- Janet Bolaji Wanjiru Latinwo
- Joanne Victoria Cooper
- John Roy Folliss
- LOUISE FISK
- PATRICK TAYLOR
- Stephanie Jayne Spencer
Trustee list from the Charity Commission register (current, not historical).
Operates in: Northern Ireland · Scotland · Throughout England And Wales
Income and spending
Common questions
Is WILLIAMS SYNDROME FOUNDATION LIMITED financially healthy?
Per its FY2025 accounts: The accounts state that unrestricted reserves stood at £451,479 at the year end, with free reserves of £27,531 considered adequate to support planned activities and the next triennial convention. The Trustees consider the financial position to be stable and satisfactory, noting that most income is raised through membership donations and fundraising. Its FY2025 accounts were independently examined.
Who funds WILLIAMS SYNDROME FOUNDATION LIMITED?
Funders whose own accounts filings name WILLIAMS SYNDROME FOUNDATION LIMITED as a grant recipient include THE PAROCHIAL CHURCH COUNCIL OF THE ECCLESIASTICAL PARISH OF ALL SAINTS' DIDCOT.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.
Charities like this
Semantically similar by activities and financial character, from our analysed corpus. Compare with INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION.
Side by side with its peers
Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.