KEEP ME BREATHING
Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
Financial health, per its FY2025 accounts
The accounts state that the charity held unrestricted reserves of £73,546 against a policy target of covering four to five months of outgoings, currently estimated at £35,000. Although the charity reported a net expenditure for the period, the unrestricted funds remain above the stated policy minimum. The trustees confirmed there is no material uncertainty regarding the charity's ability to continue as a going concern.
What the accounts disclose
“Keep Me Breathing aims to hold an amount as a reserve which is intended to cover regular monthly outgoings for around four to five months, including financial, IT charges and staff costs, which currently amounts to £35,000.” — page 2
“Trustee, Mr J D Oakley, was paid £21,233 (2024: £nil) during the year for undertaking various management roles including driving the charity’s fundraising activity, and developing and maintaining strategic partnerships with research and medical professionals.” — page 18
“Trustee, Mr J D Oakley, was paid £21,233 (2024: £nil) during the year for undertaking various management roles including driving the charity’s fundraising activity, and developing and maintaining strategic partnerships with research and medical professionals.” — page 18
“Mr J Oakley is the managing director of James Oakley Media Limited. James Oakley Media Limited provided a start up loan to the charity of £20,000 in the previous period, of which £10,000 has been repaid. The remaining balance has been waivered, leaving £nil (2024 - £15,000) outstanding at the period-end.” — page 21
“Trustee, Mr J D Oakley, was paid £21,233 (2024: £nil) during the year for undertaking various management roles including driving the charity’s fundraising activity, and developing and maintaining strategic partnerships with research and medical professionals.” — page 18
“Mr J Oakley is the managing director of James Oakley Media Limited. James Oakley Media Limited provided a start up loan to the charity of £20,000 in the previous period, of which £10,000 has been repaid. The remaining balance has been waivered, leaving £nil (2024 - £15,000) outstanding at the period-end.” — page 21
“Trustee, Mr J D Oakley, was paid £21,233 (2024: £nil) during the year for undertaking various management roles including driving the charity’s fundraising activity, and developing and maintaining strategic partnerships with research and medical professionals.” — page 18
“Mr J Oakley is the managing director of James Oakley Media Limited. James Oakley Media Limited provided a start up loan to the charity of £20,000 in the previous period, of which £10,000 has been repaid. The remaining balance has been waivered, leaving £nil (2024 - £15,000) outstanding at the period-end.” — page 21
Trustees
- James Oakleychair
- ELOISE FRANCIS KENT
- Emma Lucas
- Stephanie Roberts
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 28/02/2025 | £134k | £175k |
| 30/09/2023 | £345k | £32k |
Common questions
Is KEEP ME BREATHING financially healthy?
Per its FY2025 accounts: The accounts state that the charity held unrestricted reserves of £73,546 against a policy target of covering four to five months of outgoings, currently estimated at £35,000. Although the charity reported a net expenditure for the period, the unrestricted funds remain above the stated policy minimum. The trustees confirmed there is no material uncertainty regarding the charity's ability to continue as a going concern. Its FY2025 accounts were independently examined.
Who funds KEEP ME BREATHING?
Funders whose own accounts filings name KEEP ME BREATHING as a grant recipient include THE SACHS FOUNDATION.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| THE SACHS FOUNDATION | FY2024 | £10k | |
| THE SACHS FOUNDATION | FY2025 | £3k |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| ANSON CHARITABLE TRUST | 2 | £36k |
| CHRISTOS LAZARI FOUNDATION | 2 | £13k |
| GUY'S AND ST THOMAS' FOUNDATION | 1 | £872k |
| THE FIDELITY UK FOUNDATION | 1 | £419k |
| BUPA FOUNDATION | 1 | £210k |
| THE MICHAEL COWAN FOUNDATION | 1 | £150k |
| ASSOCIATION OF NHS CHARITIES | 1 | £137k |
| THE STEVEN BLOCH IMAGE OF DISABILITY CHARITABLE TRUST | 1 | £102k |
Charities like this
- THE BREATHWORKS FOUNDATION
- Asthma and Lung UK
- FRIENDS OF BREATHE ARTS HEALTH RESEARCH
- PCD RESEARCH
- THE NATIONAL ASSOCIATION FOR THE RELIEF OF APNOEA GENERALLY KNOWN AS HELP PREVENT A COT DEATH APPEAL
- THE LIVERPOOL HEART AND CHEST HOSPITAL CHARITY
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| KEEP ME BREATHING | £134k | — | 0 | unclear | — | no doubt |
| THE BREATHWORKS FOUNDATION | £453k | — | 0 | unclear | — | no doubt |
| Asthma and Lung UK | £16.1m | — | — | unclear | — | no doubt |
| FRIENDS OF BREATHE ARTS HEALTH RESEARCH | £154k | — | 0 | unclear | — | no doubt |
| PCD RESEARCH | £239k | — | 0 | unclear | — | no doubt |
| THE NATIONAL ASSOCIATION FOR THE RELIEF OF APNOEA GENERALLY KNOWN AS HELP PREVENT A COT DEATH APPEAL | £115k | — | 0 | unclear | — | no doubt |