POMPE SUPPORT NETWORK

Registered charity 1186383 · accounts filings on the Charity Commission register · also known as PSN

The Pompe Support Network is an organisation developed by the UK Pompe community in order to support others within the community. Together we: - Provide peer to peer support - Support research into medical and supportive care. - Provide information about promising medical developments. - Advocate for access to medical therapies or devices. - Share life experiences

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income

£94k

Latest spending

£68k

Registered

2019

Accounts read

FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity holds unrestricted reserves of £63,900, which is below its stated policy target of no greater than 25% of total in-year expenditure. The trustees confirm that the going concern basis of accounting is appropriate and that the charity has adequate resources to continue in operational existence for the foreseeable future.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves position: below the charity's own stated reserves policy (held: £64k; policy: no greater than 25% of total in year expenditure)

“The trustees have agreed to adopt a reserve policy that seeks to carry forward an unrestricted general reserve figure that is no greater than 25% of total in year expenditure.”

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — Pompe Support Network (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook

Trustees · trustee networks

Allan David John Muirchair · trustee of 1 other charity
Barbara Jane Muir
Dr Kevin John O'Donnell
Gemma Leanne Stubbings
Kevin William Annesley
Luke David Fraser
Malcolm Knightley
Stuart Derick Goodwin
Wayne Belfitt

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/03/2025	£94k	£68k
31/03/2024	£72k	£61k
31/03/2023	£92k	£75k
31/03/2022	£80k	£119k
31/03/2021	£93k	£45k

Common questions

Is POMPE SUPPORT NETWORK financially healthy?

Per its FY2025 accounts: The accounts state that the charity holds unrestricted reserves of £63,900, which is below its stated policy target of no greater than 25% of total in-year expenditure. The trustees confirm that the going concern basis of accounting is appropriate and that the charity has adequate resources to continue in operational existence for the foreseeable future. Its FY2025 accounts were independently examined.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
The National Lottery Community Fund	14/10/2022	£10k	Rare Delights
UK government	29/07/2020	£10k	Coronavirus Community Support Fund
The National Lottery Community Fund	31/01/2020	£10k	Pompe Community Wellbeing