NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY
Providing information to the general public about the Condition and providing support and advice to people living with the Condition, their families, carers, service providers and employers. Advocating to ensure that every person has timely and effective diagnosis, treatment and care of the Condition. Funding and disseminating research into the management and cure of axial SpA and its causes.
Objects
THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE IN THE UNITED KINGDOM LIVING WITH THE MEDICAL CONDITION AXIAL SPONDYLOARTHRITIS WHICH INCLUDES ANKYLOSING SPONDYLITIS (TOGETHER KNOWN AS THE ‘CONDITION’) IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING INFORMATION TO THE GENERAL PUBLIC ABOUT THE CONDITION AND PROVIDING SUPPORT AND ADVICE TO PEOPLE LIVING WITH THE CONDITION, THEIR FAMILIES, CARERS, SERVICE –PROVIDERS AND EMPLOYERS; B) ADVOCATING TO ENSURE THAT EVERY PERSON HAS TIMELY AND EFFECTIVE DIAGNOSIS, TREATMENT AND CARE OF THE CONDITION; C) FUNDING AND DISSEMINATING RESEARCH AND ANALYSIS TO ADVANCE SCIENTIFIC UNDERSTANDING OF THE CONDITION AND ITS EFFECTIVE TREATMENT.
Financial health, per its FY2025 accounts
The accounts state that the charity achieved a broadly break-even position with a net deficit of £198 for the year ended 31 December 2025. Per the trustees' report, the charity holds free reserves of £371,767, which represent approximately four months of operating costs, falling below its stated policy target of holding six to nine months of reserves.
What the accounts disclose
“The largest single source of funding was legacies (27%)” — page 21
“As a general policy, we currently aim to hold 6-9 months of free reserves.” — page 20
“One trustee received a retirement gift with a value of £383 in recognition of their voluntary service to the charity.” — page 53
Policies the charity declares
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/12/2025
- Volunteers: 250
- Employees paid over £60,000: 1 (£110,001–£120,000: 1)
Self-declared on the annual return for the financial year ending 31/12/2024
- Volunteers: 250
- Employees paid over £60,000: 1 (£100,001–£110,000: 1)
Self-declared on the annual return for the financial year ending 31/12/2023
- Volunteers: 250
- Employees paid over £60,000: 1 (£100,001–£110,000: 1)
Property (HM Land Registry)
Structured financials (annual return, FY ending 31/12/2025)
Register events
- Received assets from another charity (11/11/2021)
Trustees
- Hannah Brucechair
- Ben Davies
- Christopher McHugh
- Claire Jeffries
- Dr Lesley Jane Kay
- Dr Raj Amarnani
- Gillian Eames
- Jane Elizabeth Freeston
- Josephine Davies
- MICHAEL ANTHONY FRANKL
- Paul Curry
- Thomas Randall
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2025 | £1.1m | £1.1m |
| 31/12/2024 | £1.1m | £1.1m |
| 31/12/2023 | £1.0m | £1.2m |
| 31/12/2022 | £1.0m | £1.5m |
| 31/12/2021 | £1.2m | £1.1m |
Common questions
Is NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY financially healthy?
Per its FY2025 accounts: The accounts state that the charity achieved a broadly break-even position with a net deficit of £198 for the year ended 31 December 2025. Per the trustees' report, the charity holds free reserves of £371,767, which represent approximately four months of operating costs, falling below its stated policy target of holding six to nine months of reserves. Its FY2025 accounts were audited by BKL Audit LLP.
Who funds NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY?
Funders whose own accounts filings name NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY as a grant recipient include THE ALICE ELLEN COOPER-DEAN CHARITABLE FOUNDATION, JOAN AINSLIE CHARITABLE TRUST, THE FORRESTER FAMILY TRUST, THE EDWARD CADBURY CHARITABLE TRUST, THE OAKDALE TRUST.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| THE ALICE ELLEN COOPER-DEAN CHARITABLE FOUNDATION | FY2023 | £10k | |
| JOAN AINSLIE CHARITABLE TRUST | FY2023 | £5k | |
| THE FORRESTER FAMILY TRUST | FY2022 | £5k | SMALLER GRANTS |
| JOAN AINSLIE CHARITABLE TRUST | FY2025 | £5k | |
| THE ALICE ELLEN COOPER-DEAN CHARITABLE FOUNDATION | FY2022 | £4k | |
| THE EDWARD CADBURY CHARITABLE TRUST | FY2023 | £3k | Compassionate Support |
| THE OAKDALE TRUST | FY2024 | £2k | |
| The Squire Patton Boggs Charitable Trust | FY2022 | £500 | The Advancement of Health or Saving of Lives |
| EXTRA MILE CHALLENGES | FY2023 | £420 |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 24/02/2026 | £19k | Building a supportive axial SpA community in NI |
| The National Lottery Community Fund | 10/10/2024 | £18k | Bespoke support programme for people newly diagnosed with axial SpA |
| The National Lottery Community Fund | 13/05/2024 | £18k | Supporting people in Northern Ireland to live well with axial spondyloarthritis |
| The National Lottery Community Fund | 23/04/2024 | £15k | Living well with axial spondyloarthritis in Wales |
| The National Lottery Community Fund | 11/06/2021 | £9k | A new education event to improving health outcomes for AS patients in Newcastle |
| UK government | 03/08/2020 | £10k | Coronavirus Community Support Fund |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE THOMAS J HORNE MEMORIAL TRUST | 2 | £44k |
| THE SIR JAMES RECKITT CHARITY | 2 | £18k |
| THE SIR JAMES ROLL CHARITABLE TRUST | 2 | £5k |
| THE WILLIE AND MABEL MORRIS CHARITABLE TRUST | 2 | £3k |
| THE WARWICKSHIRE MASONIC CHARITABLE ASSOCIATION LIMITED | 2 | £2k |
| THE MICHAEL AND ANNA WIX CHARITABLE TRUST | 2 | £400 |
| THE MASTER CHARITABLE TRUST | 1 | £250k |
| THE BIG YELLOW FOUNDATION | 1 | £185k |
Charities like this
- AXIAL SPONDYLOARTHRITIS INTERNATIONAL FEDERATION
- THE NEUROFIBROMATOSIS ASSOCIATION
- THE NATIONAL RHEUMATOID ARTHRITIS SOCIETY
- MULTIPLE SYSTEM ATROPHY TRUST
- NATIONAL ASSOCIATION FOR ABLE CHILDREN IN EDUCATION
- Research SMA
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| NATIONAL AXIAL SPONDYLOARTHRITIS SOCIETY | £1.1m | — | — | unclear | — | no doubt |
| AXIAL SPONDYLOARTHRITIS INTERNATIONAL FEDERATION | £257k | £60,000 - £70,000 | 1 | within | — | no doubt |
| THE NEUROFIBROMATOSIS ASSOCIATION | £555k | — | 0 | below | 24.1% | no doubt |
| THE NATIONAL RHEUMATOID ARTHRITIS SOCIETY | £1.7m | — | — | unclear | — | no doubt |
| MULTIPLE SYSTEM ATROPHY TRUST | £1.9m | — | 0 | above | — | no doubt |
| NATIONAL ASSOCIATION FOR ABLE CHILDREN IN EDUCATION | £374k | — | — | below | — | no doubt |