THE NEUROFIBROMATOSIS ASSOCIATION

Registered charity 1078790 · accounts filings on the Charity Commission register · also known as NFA, Nerve Tumours UK, THE NEURO FOUNDATION · also registered in Scotland as SC045051 (OSCR)

The charity's mission is to enable people concerned about neurofibromatosis to find solutions appropriate for them.

Causes: General Charitable Purposes · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income

£555k

Latest spending

£548k

Registered

2000

Accounts read

FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity generated a net surplus of £7,401 for the year ended 31 October 2025, with total income of £555,411 against total expenditure of £548,010. The trustees report that free/unrestricted reserves stand at £123,466, which is below the stated policy target of £500,000, yet they remain confident in the charity's ability to continue as a going concern.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Fundraising cost ratio: 24.1% of fundraised income, as disclosed

“Cost of raising funds 133,788” — page 15

Per its FY2025 accounts as filed with the Charity Commission.

Reserves position: below the charity's own stated reserves policy (held: £123k; policy: £500,000)

“This leaves a figure for free reserves of £123,466, for expenditure in the next financial year.” — page 25

Per its FY2025 accounts as filed with the Charity Commission.

Accounts audited by David Howard. Discloses 5 of 6 completeness components.

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/10/2025)

Total income

£555k

Total spending

£548k

Cost of raising funds

£134k

Reserves (reported)

£123k

Employees

Reported reserves equal ~2.7 months of spending — below the median for charities its size (median 5.2 months; benchmarks).

Per its annual return, cost of raising funds: 24.1% of total income — in the top quarter for charities its size (median 4.9%) (benchmarks).

Trustees · trustee networks

Richard Eric Greenway Goodechair
Alexis Rohan Chanmugam
Jeremy Howard Bogush
Jonathan Peter Bruce · trustee of 1 other charity
Matthew William Buchan Jones
Professor Meena Upadhyaya · trustee of 2 other charities
Professor Rosalie Elaine Ferner

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/10/2025	£555k	£548k
31/10/2024	£487k	£486k
31/10/2023	£456k	£425k
31/10/2022	£513k	£448k
31/10/2021	£397k	£391k

Common questions

Is THE NEUROFIBROMATOSIS ASSOCIATION financially healthy?

Per its FY2025 accounts: The accounts state that the charity generated a net surplus of £7,401 for the year ended 31 October 2025, with total income of £555,411 against total expenditure of £548,010. The trustees report that free/unrestricted reserves stand at £123,466, which is below the stated policy target of £500,000, yet they remain confident in the charity's ability to continue as a going concern. Its FY2025 accounts were audited by David Howard.

Who funds THE NEUROFIBROMATOSIS ASSOCIATION?

Funders whose own accounts filings name THE NEUROFIBROMATOSIS ASSOCIATION as a grant recipient include PEACOCK CHARITABLE TRUST, THE THREE OAKS TRUST, THE THOMAS J HORNE MEMORIAL TRUST, THE ROGER & DOUGLAS TURNER CHARITABLE TRUST, THE CLARE MILNE TRUST.

Known funders

Grants to this charity found in funders’ own accounts filings.

Funder	Year	Amount	Purpose (as stated by the funder)
PEACOCK CHARITABLE TRUST	FY2024	£10k
THE THREE OAKS TRUST	FY2022	£10k	Support for those affected by neurofibromatosis. Contribution towards the cost of specialist nurses
THE THOMAS J HORNE MEMORIAL TRUST	FY2025	£6k
THE THOMAS J HORNE MEMORIAL TRUST	FY2023	£6k
THE THOMAS J HORNE MEMORIAL TRUST	FY2024	£6k
THE ROGER & DOUGLAS TURNER CHARITABLE TRUST	FY2023	£5k
THE CLARE MILNE TRUST	FY2025	£5k
THE ROGER & DOUGLAS TURNER CHARITABLE TRUST	FY2024	£5k
THE ROGER & DOUGLAS TURNER CHARITABLE TRUST	FY2022	£5k
THE THOMAS J HORNE MEMORIAL TRUST	FY2022	£5k
THE DIXIE ROSE FINDLAY CHARITABLE TRUST	FY2023	£3k
THE HOSPITAL OF GILBERT, EARL OF SHREWSBURY AT SHEFFIELD	FY2022	£2k	social welfare
SHEFFIELD TOWN TRUST	FY2022	£2k
THE SIR JAMES ROLL CHARITABLE TRUST	FY2023	£1k
THE HILARY AWDRY CHARITABLE TRUST	FY2022	£1k
THE HILARY AWDRY CHARITABLE TRUST	FY2022	£1k
THE WARWICKSHIRE MASONIC CHARITABLE ASSOCIATION LIMITED	FY2024	£500
THE ARDWICK TRUST	FY2024	£200
THE THOMAS J HORNE MEMORIAL TRUST	FY2025	£0

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
The National Lottery Community Fund	27/02/2025	£19k	Online Peer Support Groups For People Living With NF
UK government	09/09/2020	£50k	Coronavirus Community Support Fund
The National Lottery Community Fund	17/04/2020	£5k	Extended National Neurofibromatosis Helpline
The National Lottery Community Fund	24/02/2020	£10k	Family Information Days
The National Lottery Community Fund	31/08/2018	£10k	Family Information Days
The National Lottery Community Fund	25/01/2017	£5k	Family Information Day
The National Lottery Community Fund	21/01/2017	£5k	Family Information Day
The National Lottery Community Fund	18/11/2015	£10k	Family Information Days
Northern Rock Foundation	01/08/2001	£8k	Grant awarded to The Neurofibromatosis Association (Northern)
Northern Rock Foundation	10/03/1998	£68k	Grant awarded to The Neurofibromatosis Association (Northern)