Harry's Hydrocephalus Awareness Trust
1) We work to raise awareness of paediatric hydrocephalus 2) We educate those working in front-line services about the condition to improve understanding and patient care3) We connect families affected by the condition to reduce isolation 4) We campaign for better awareness of head circumference measurement as a tool for early diagnosis5) We support research into better treatment options
Objects
To relieve sickness and to assist in the treatment and care of persons suffering from hydrocephalus and/or arachnoid cyst across the UK including by: (a) financing health professionals across the UK with an interest in paediatric arachnoid cysts and/or hydrocephalus to enable them to further their knowledge and understanding ensuring the highest professional standards (b) promoting independent research into the prevention and treatment of hydrocephalus and/or arachnoid cyst provided that all useful results are disseminated to the public (c) providing information and support to people and their families/carers with hydrocephalus and/or arachnoid cyst.
Financial health, per its FY2025 accounts
The accounts state that unrestricted reserves increased to £137,491, which is within the charity's stated policy target of holding six to nine months of running costs. The charity reported a net income of £19,612 for the year, supported by total incoming resources of £212,321 against total expenditure of £192,709.
What the accounts disclose
“The charity's policy is to hold six to nine months of running costs in reserves.” — page 5
Policies the charity declares
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Investment
- Paying staff
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Trustees
- Jez Hansonchair
- Ashwin Kumaria
- Catherine Alison Kelly
- Denise Deacon
- Louise Fleming
- Matthew Coates
- NAGHZA KHOKHAR
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £212k | £193k |
| 31/03/2024 | £200k | £141k |
| 31/03/2023 | £190k | £101k |
| 31/03/2022 | £53k | £33k |
| 31/03/2021 | £36k | £14k |
Common questions
Is Harry's Hydrocephalus Awareness Trust financially healthy?
Per its FY2025 accounts: The accounts state that unrestricted reserves increased to £137,491, which is within the charity's stated policy target of holding six to nine months of running costs. The charity reported a net income of £19,612 for the year, supported by total incoming resources of £212,321 against total expenditure of £192,709. Its FY2025 accounts were independently examined.
Who funds Harry's Hydrocephalus Awareness Trust?
Funders whose own accounts filings name Harry's Hydrocephalus Awareness Trust as a grant recipient include BOOTS CHARITABLE TRUST, FRIMLEY FUEL ALLOTMENTS CIO.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| BOOTS CHARITABLE TRUST | FY2024 | £10k | |
| FRIMLEY FUEL ALLOTMENTS CIO | FY2024 | £10k |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| Crowdfunder | 28/09/2022 | £2k | Local Action Fund |
| The National Lottery Community Fund | 10/06/2022 | £10k | Understanding Hydrocephalus |
| The National Lottery Community Fund | 25/02/2022 | £179k | Next Steps |
| The National Lottery Community Fund | 22/05/2020 | £10k | COVID-19 Hydrocephalus App |
| The National Lottery Community Fund | 27/06/2019 | £10k | Hydrocephalus Awareness and education |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| WARWICKSHIRE FREEMASONS' CHARITABLE FOUNDATION | 2 | £4k |
| THE IAN ASKEW CHARITABLE TRUST | 2 | £3k |
| GOWLING WLG (UK) CHARITABLE TRUST | 2 | £3k |
| THE OAKDALE TRUST | 2 | £3k |
| THE MILLENNIUM OAK TRUST | 1 | — |
| THE THALES CHARITABLE TRUST | 1 | — |
| THE STONEYGATE TRUST | 1 | £1.3m |
| JOSEPH LEVY FOUNDATION | 1 | £220k |
Charities like this
- NORTH AND WEST YORKSHIRE ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS
- THE HARRY & MARY FOUNDATION
- OSCAR'S PAEDIATRIC BRAIN TUMOUR CHARITY
- THE GET A HEAD CHARITABLE TRUST
- CYSTIC FIBROSIS TRUST
- CAREDUCATION TRUST LTD
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| Harry's Hydrocephalus Awareness Trust | £212k | — | 0 | unclear | — | no doubt |
| NORTH AND WEST YORKSHIRE ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS | £81k | £39,678 | 0 | unclear | — | no doubt |
| THE HARRY & MARY FOUNDATION | £632k | — | 0 | unclear | — | no doubt |
| OSCAR'S PAEDIATRIC BRAIN TUMOUR CHARITY | £382k | — | 0 | unclear | — | no doubt |
| THE GET A HEAD CHARITABLE TRUST | £476k | — | 0 | unclear | — | no doubt |
| CYSTIC FIBROSIS TRUST | £12.0m | — | — | above | — | no doubt |