INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION
IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available.
Financial health, per its FY2025 accounts
The accounts state that the charity reported a net deficit of $19,255 for the year ended 31 December 2025, resulting in a decrease in total funds from $447,665 to $428,410. Per the trustees' report, free unrestricted reserves amounted to $344,754, which the trustees consider sufficient to meet obligations and ensure financial stability. The charity confirmed it has adequate resources to continue in operational existence for the foreseeable future.
What the accounts disclose
“IPWSO’s reserves policy is to retain sufficient unrestricted reserves to meet its obligations and to ensure financial stability.” — page 6
“During the year, donations totaling $313 (2024: $654 from 3 Trustees) were received from 2 Trustees and $23,764 (2024: $21,710) from our Honorary President, Jean Phillips Martinsson. There are no conditions attached to these donations.” — page 26
“During the year, donations totaling $313 (2024: $654 from 3 Trustees) were received from 2 Trustees and $23,764 (2024: $21,710) from our Honorary President, Jean Phillips Martinsson. There are no conditions attached to these donations.” — page 26
“During the year, donations totaling $313 (2024: $654 from 3 Trustees) were received from 2 Trustees and $23,764 (2024: $21,710) from our Honorary President, Jean Phillips Martinsson. There are no conditions attached to these donations.” — page 26
“During the year, donations totaling $313 (2024: $654 from 3 Trustees) were received from 2 Trustees and $23,764 (2024: $21,710) from our Honorary President, Jean Phillips Martinsson. There are no conditions attached to these donations.” — page 26
Trustees
- Brett Peter Thompson
- Dagmar Kiderlen
- Dr Nathalie Kayadjanian
- Jackie Lodge
- Johana Quinn
- Karin Clarke
- Lantz Yap Chee Seng
- Liane Oliveira Mufarrej Motta
- Patrice Carroll
- Professor Nicholas Finer
- Scott Arant
- Tunde Baloghne Liplin
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2025 | £207k | £221k |
| 31/12/2024 | £245k | £217k |
| 31/12/2023 | £164k | £159k |
| 31/12/2022 | £331k | £268k |
| 31/12/2021 | £247k | £162k |
Common questions
Is INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a net deficit of $19,255 for the year ended 31 December 2025, resulting in a decrease in total funds from $447,665 to $428,410. Per the trustees' report, free unrestricted reserves amounted to $344,754, which the trustees consider sufficient to meet obligations and ensure financial stability. The charity confirmed it has adequate resources to continue in operational existence for the foreseeable future. Its FY2025 accounts were independently examined.
Funders of similar charities
Charities like this
- DOWN SYNDROME INTERNATIONAL
- THE INTERNATIONAL SOCIETY FOR PEDIATRIC AND ADOLESCENT DIABETES
- IPSUM
- WILLIAMS SYNDROME FOUNDATION LIMITED
- PATIENT WELFARE SOCIETY (PWS)
- IPAS UK
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION | £207k | — | 0 | above | — | no doubt |
| DOWN SYNDROME INTERNATIONAL | £389k | — | 1 | below | — | no doubt |
| THE INTERNATIONAL SOCIETY FOR PEDIATRIC AND ADOLESCENT DIABETES | £1.2m | — | 0 | above | — | material uncertainty |
| IPSUM | £358k | — | 0 | within | — | no doubt |
| WILLIAMS SYNDROME FOUNDATION LIMITED | £208k | — | 0 | unclear | — | no doubt |
| PATIENT WELFARE SOCIETY (PWS) | £169k | — | 0 | unclear | — | no doubt |