PTEN UK AND IRELAND PATIENT GROUP

Registered charity 1172205 · accounts filings on the Charity Commission register

Promote, protect and improve healthcare of persons affected by PTEN Hamatoma Tumour SyndromeSupport and promote research into the Syndrome

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income
£48k
Latest spending
£29k
Registered
2017
Accounts read
FY2024

Financial health, per its FY2024 accounts

The accounts state that the charity generated a surplus of £18,668 for the year, increasing its total unrestricted and restricted funds to £36,704. The trustees report that the reserves target of £2,000 was achieved, with unrestricted undesignated funds standing at £23,204. The independent examiner confirmed that no material matters came to their attention during the examination of the accounts.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: £2,000 (held: £23k)
“It is the trustees’ policy to hold unrestricted general reserves amounting to £2,000 to reflect budgeted and unexpected calls upon resources within the coming year.” — page 4
Per its FY2024 accounts as filed with the Charity Commission.
Payments to trustees: Trustees K Kearley and E Collins received remuneration for services (£8,000 and £330 respectively).
“During the year, as allowed under the constitution, a Trustee { K Kearley) undertook the duties of the charity manager under a contractual agreement. The amount chargeable under this contractual agreement was £8,000” — page 13
Per its FY2024 accounts as filed with the Charity Commission.
Related-party transaction: Trustee K Kearley received £8,000 for charity manager duties under a contractual agreement.
“a Trustee { K Kearley) undertook the duties of the charity manager under a contractual agreement. The amount chargeable under this contractual agreement was £8,000”
“a Trustee (E Collins) undertook social media and communications duties by contractual arrangement. The amount chargeable under this arrangement was £330”
Per its FY2024 accounts as filed with the Charity Commission.
Related-party transaction: Trustee E Collins received £330 for social media and communications duties under a contractual arrangement.
“a Trustee { K Kearley) undertook the duties of the charity manager under a contractual agreement. The amount chargeable under this contractual agreement was £8,000”
“a Trustee (E Collins) undertook social media and communications duties by contractual arrangement. The amount chargeable under this arrangement was £330”
Per its FY2024 accounts as filed with the Charity Commission.
Related-party transaction: Trustees were reimbursed for out-of-pocket expenses totaling £1,221.
“a Trustee { K Kearley) undertook the duties of the charity manager under a contractual agreement. The amount chargeable under this contractual agreement was £8,000”
“a Trustee (E Collins) undertook social media and communications duties by contractual arrangement. The amount chargeable under this arrangement was £330”
Per its FY2024 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — PTEN UK and Ireland Patient Group (matched by registered charity number).

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Ireland · Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/12/2024£48k£29k
31/12/2023£31k£25k
31/12/2022£9k£10k
31/12/2021£2k£2k
31/12/2020£9k£3k

Common questions

Is PTEN UK AND IRELAND PATIENT GROUP financially healthy?

Per its FY2024 accounts: The accounts state that the charity generated a surplus of £18,668 for the year, increasing its total unrestricted and restricted funds to £36,704. The trustees report that the reserves target of £2,000 was achieved, with unrestricted undesignated funds standing at £23,204. The independent examiner confirmed that no material matters came to their attention during the examination of the accounts. Its FY2024 accounts were independently examined.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
Postcode Lottery08/10/2025£24kUnrestricted Funding
The National Lottery Community Fund01/08/2024£20kThe PTEN UK and Ireland Patient Group Counselling Service
The National Lottery Community Fund05/05/2023£10kThe PTEN UK and Ireland Patient Group Counselling Service