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UK INFANTILE SPASMS TRUST

Registered charity 1172167 · accounts filings on the Charity Commission register · also known as UKIST - UK INFANTILE SPASMS TRUST

Raising money to help families who have children who suffer from spasms with support and care.

Causes: General Charitable Purposes · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income
£87k
Latest spending
£40k
Registered
2017
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity held unrestricted reserves of £99,469 at the end of the period, with a total profit for the year of £20,415. The trustees report that the charity has a reserves policy targeting three months of operational costs and has designated funds for future commitments. The independent examiner confirmed that no material matters came to their attention that would cause concern about the charity's governance or accounts.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Largest income source: Donations received
“The charity’s principal source of funding is by families affected by infantile spasms (IS), family friends and charity Trustees. £20,000 was generously donated by The Phillips 2012 Charitable Trust.” — page 5
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: three months operational costs (held: £99k)
“The charity has a reserves policy and has made great strides in actioning the necessary steps to ensure reserves are managed well, not only in terms of including 3 months operational costs but it also has designated funds for future expenditure commitments.” — page 5
Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — UK Infantile Spasms Trust (UKIST) (matched by registered charity number).

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

Public profiles (found on the charity’s own website): facebook

Register events

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£87k£40k
05/04/2024£44k£24k
05/04/2023£24k£16k
05/04/2022£46k£17k
05/04/2021£40k£16k

Common questions

Is UK INFANTILE SPASMS TRUST financially healthy?

Per its FY2025 accounts: The accounts state that the charity held unrestricted reserves of £99,469 at the end of the period, with a total profit for the year of £20,415. The trustees report that the charity has a reserves policy targeting three months of operational costs and has designated funds for future commitments. The independent examiner confirmed that no material matters came to their attention that would cause concern about the charity's governance or accounts. Its FY2025 accounts were independently examined.

Who funds UK INFANTILE SPASMS TRUST?

Funders whose own accounts filings name UK INFANTILE SPASMS TRUST as a grant recipient include THE HISCOX FOUNDATION, THE GOLDHILL FAMILY CHARITABLE TRUST.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
THE HISCOX FOUNDATIONFY2025£16k
THE GOLDHILL FAMILY CHARITABLE TRUSTFY2024£1k
THE HISCOX FOUNDATIONFY2024£500

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
UK government23/07/2020£3kCoronavirus Community Support Fund