CARDIOMYOPATHY UK

Registered charity 1164263 · accounts filings on the Charity Commission register · also registered in Scotland as SC053398 (OSCR)

Cardiomyopathy UK saves lives and reduces the misery caused by the heart muscle disease cardiomyopathy. We want people affected by the disorder to live long and fulfilling lives and work to achieve this by raising awareness of the condition, improving access to quality treatment, promoting clinical research and supporting anyone affected by cardiomyopathy every step of the way.

Objects

TO RELIEVE PEOPLE SUFFERING FROM THE CONDITION OF CARDIOMYOPATHY AND RELATED CONDITIONS IN PARTICULAR ( BUT WITHOUT PREJUDICE TO THE GENERALITY THEREOF) BY:A) DEVELOPING AND MAINTAINING A NETWORK OF SUPPORT FOR PEOPLE SUFFERING FROM THE CONDITION AND THEIR FAMILIESB) PROMOTING EDUCATION AMONG SUFFERERS OF THE CONDITION, THEIR FAMILIES AND THOSE HAVING THE PROFESSIONAL CARE OF SUFFERERS ABOUT THE SYMPTOMS AND THE TREATMENT OF THE CONDITION; ANDC) PROMOTING OR ASSISTING IN THE PROMOTION OF RESEARCH INTO THE CONDITION AND ITS TREATMENT AND THE PUBLICATION OF THE RESULTS OF THAT RESEARCH.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Disability · Education/training · The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Registered contact address: Buckinghamshire, South East, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The charity reported a net expenditure deficit of £112,587 for the year ended 31 December 2025, resulting in a decrease in total funds from £742,685 to £630,098. Despite this deficit, the trustees state that free reserves of £512,293 (equivalent to 7.6 months of expenditure) remain comfortably within their stated policy target of six to nine months. The auditors confirmed that the financial statements have been prepared on a going concern basis with no material uncertainties identified.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by Streets Audit LLP. Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — Cardiomyopathy UK (matched by registered charity number).

Leadership, per the charity’s website

• Katharine McIntosh — Chief Executive Officer (source)

Listed on the charity’s own website when we last crawled it; roles may have changed. Pay-band disclosures above are anonymous statutory disclosures and are not attributed to any named individual.

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• Alexander Jansons Fund — “We were able to award a grant of £120,000 through the Alexander Jansons Fund, Additional funds were raised through a Crowdfunder campaign.” (source page)
• British Heart Foundation — “The CureHeart team were winners of The British Heart Foundation's Big Beat Challenge and were awarded a £30 million research grant by the ch…” (source page)
• Arrhythmogenic Cardiomyopathy Trust — “In 2020 we worked with the Arrhythmogenic Cardiomyopathy Trust to fund a two year research project at University College London.” (source page)

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/12/2025)

Reported reserves equal ~5.1 months of spending — above the median for charities its size (median 4.7 months; benchmarks).

Per its annual return, cost of raising funds: 32.3% of total income — in the top quarter for charities its size (median 5.3%) (benchmarks).

Register events

• Received assets from another charity (25/08/2022) — per the register’s event history; asset transfers typically record mergers or reorganisations.
• Received assets from another charity (18/04/2019) — per the register’s event history; asset transfers typically record mergers or reorganisations.
• Received assets from another charity (14/12/2016) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Alyson Smith
• Betsy Thomas
• Karla Mullins
• Mark Anthony Rees
• Martin Bloom
• Paul Aherne-Conroy
• Peter Thomas
• Teofila Bueser

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with INTERNATIONAL CARDIOMYOPATHY NETWORK.

• INTERNATIONAL CARDIOMYOPATHY NETWORK income £140k
• HEART RESEARCH UK income £3.4m
• LONDON HEARTS income £5.4m
• HEART VALVE VOICE income £402k
• CARDIAC AND THORACIC SURGERY UK income £146k
• ARRHYTHMIA ALLIANCE income £793k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.