INTERNATIONAL CARDIOMYOPATHY NETWORK

Registered charity 1184472 · accounts filings on the Charity Commission register · also known as ICON

Education of healthcare professionals regarding cardiomyopathy and related conditionsPromotion of research into cardiomyopathy and related conditionsEstablishment of best practice in the treatment and management of cardiomyopathy and related conditions

Objects

(1) TO ADVANCE THE EDUCATION OF HEALTHCARE PROFESSIONAL ON THE SUBJECT OF CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE THROUGH THE PROVISION OF EDUCATIONAL LEARNING OPPORTUNITIES AND OTHER METHODS THAT TRUSTEES SEE FIT SO AS TO IMPROVE THE DETECTION AND TREATMENT OF SUCH DISEASES FOR THE PUBLIC BENEFIT.(2) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE THROUGH THE PROMOTION AND FACILITATION OF RESEARCH FOR THE PUBLIC BENEFIT IN ALL ASPECTS OF CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE BY PROVIDING NETWORKING OPPORTUNITIES FOR RESEARCHERS, SUPPORT AND ADVICE TO RESEARCHERS AND OTHER MEANS TRUSTEES SEE FIT.(3) TO ADVANCE THE EDUCATION OF HEALTHCARE PROFESSIONALS WORLDWIDE THROUGH THE DISSEMINATION OF THE RESULTS OF RESEARCH INTO CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE.(4) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY AND DISEASES OF THE HEART MUSCLE WORLDWIDE THROUGH THE CREATION, MONITORING AND DEVELOPMENT OF RELEVANT GUIDANCE ON THE TREATMENT OF SUCH DISEASES.(5) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY WORLDWIDE THROUGH COLLABORATION WITH RELEVANT STAKEHOLDERS IN ADVOCATING FOR IMPROVE ACCESS TO TREATMENT FOR PEOPLE AFFECTED BY SUCH DISEASES.(6) TO INCREASE AWARENESS OF CARDIOMYOPATHY AND RELATED DISORDERS AMONG THE GENERAL PUBLIC AND THE SUPPORT AND INFORMATION AVAILABLE TO PEOPLE WITH CARDIOMYOPATHY AND RELATED CONDITIONS.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Get email alerts

Financial health, per its FY2024 accounts

The accounts state that the charity held total net assets of £33,259 at the end of the year, comprising £33,150 in restricted funds and £109 in unrestricted funds. The trustees report that the charity remains financially secure with adequate resources to continue in operational existence for the foreseeable future. However, the charity incurred a net expenditure of £26,095 during the year, significantly reducing its unrestricted reserves from £186 to £109.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Trustees · trustee networks

• Prof. Perry Mark Elliottchair
• Dr Aristides Anastasakis
• Dr Juan Pablo Kaski
• Dr Juan Ramon Gimeno Blanes
• Dr Lucie Carrier
• Prof. Ales Linhart
• Prof. Eloisa Arbustini
• Prof. Guiseppe Limongelli
• Prof. Jolanda Van Der Velden
• Professor Iacopo Olivotto

Trustee list from the Charity Commission register (current, not historical).

Operates in: Belgium · France · Germany · Greece · Ireland · Italy · Netherlands · Spain · Throughout England And Wales · United States

Income and spending

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