Pathfinders Neuromuscular Alliance
Our main activity is to provide advice and information to adults living with Muscular Dystrophy and related neuromuscular conditions via information events, guides and resources, and peer support activity. We also raise awareness of issues facing adults with neuromuscular conditions and provide advice on health research committees and steering groups
Objects
1.The promotion of social inclusion of people with neuromuscular conditions who are socially excluded from society, or parts of society as a result of having Muscular Dystrophy and related neuromuscular conditions by 1. Providing a network of groups that encourage and enables them to participate more effectively with the wider community,2. Increasing or co-ordinating opportunities for them to engage with organisations and service providers to enable those providers to adapt services to better meet their needs,3. Raising public awareness of the issues affecting them in all areas relating to having a neuromuscular condition,4. Providing support to those between the age of 18 and 30 who are socially excluded to establish and grow a business or enterprise to relieve their needs and assist them to integrate into society. 2. To promote and protect the physical and mental health of people with Muscular Dystrophy and related neuromuscular conditions in the United Kingdom as the trustees shall determine.
Financial health, per its FY2025 accounts
The charity holds total unrestricted reserves of £146,095 against a trustee policy target of six months of operating expenses. The accounts state the charity is in a good financial position with adequate resources to continue in operational existence for the foreseeable future.
What the accounts disclose
“It is the policy of the trustees to hold reserves to cover six months of operating expenses.” — page 8
Policies the charity declares
- Bullying and harassment policy and procedures
- Campaigns and political activity policy and procedures
- Complaints policy and procedures
- Conflicting interests
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Investing charity funds policy and procedures
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 05/04/2025
- Volunteers: 1
Self-declared on the annual return for the financial year ending 05/04/2024
- Volunteers: 25
Self-declared on the annual return for the financial year ending 05/04/2023
- Volunteers: 12
- Trustee benefits, answered Yes to: any trustee benefit; payments to trustees for services to the charity
Trustees
- Sarah Rosechair
- Andrew Tunks
- DANIEL BAKER
- Dr Kirsty Liddiard
- Joey Nathan Levene
- Vicky Mozley
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 05/04/2025 | £271k | £218k |
| 05/04/2024 | £232k | £180k |
| 05/04/2023 | £180k | £172k |
| 05/04/2022 | £244k | £135k |
| 05/04/2021 | £87k | £57k |
Common questions
Is Pathfinders Neuromuscular Alliance financially healthy?
Per its FY2025 accounts: The charity holds total unrestricted reserves of £146,095 against a trustee policy target of six months of operating expenses. The accounts state the charity is in a good financial position with adequate resources to continue in operational existence for the foreseeable future. Its FY2025 accounts were independently examined.
Who funds Pathfinders Neuromuscular Alliance?
Funders whose own accounts filings name Pathfinders Neuromuscular Alliance as a grant recipient include SKIPTON BUILDING SOCIETY CHARITABLE FOUNDATION.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| SKIPTON BUILDING SOCIETY CHARITABLE FOUNDATION | FY2024 | £3k |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 21/12/2023 | £20k | Peer-led advocacy for people with muscle-weakening conditions |
| The National Lottery Community Fund | 01/09/2021 | £301k | Disability Rights Advocacy Programme |
| The National Lottery Community Fund | 18/06/2020 | £25k | DMD Pathfinders Covid19 Support |
| The National Lottery Community Fund | 19/08/2015 | £10k | Mentoring Plus |
Funders of similar charities
| Funder | Similar charities funded | Amount to them |
|---|---|---|
| THE EDWARD GOSTLING FOUNDATION | 2 | £75k |
| SIR JULES THORN CHARITABLE TRUST | 2 | £11k |
| THE WARWICKSHIRE MASONIC CHARITABLE ASSOCIATION LIMITED | 2 | £2k |
| THE BAND TRUST | 1 | £120k |
| THE STEVE MORGAN FOUNDATION | 1 | £104k |
| HEART RESEARCH UK | 1 | £67k |
| NORWICH CONSOLIDATED CHARITIES | 1 | £35k |
| THE ELLERDALE TRUST | 1 | £28k |
Charities like this
- NEUROMUSCULAR CENTRE
- THE NEUROFIBROMATOSIS ASSOCIATION
- NMC MIDLANDS LTD
- EATING MATTERS
- MS ACTION LIMITED
- THE NEUROLOGICAL ALLIANCE
Side by side with its peers
| Charity | Income | Top pay band | Staff >£60k | Reserves vs policy | Fundraising cost | Going concern |
|---|---|---|---|---|---|---|
| Pathfinders Neuromuscular Alliance | £271k | — | 0 | unclear | — | no doubt |
| NEUROMUSCULAR CENTRE | £1.4m | — | 0 | unclear | — | no doubt |
| THE NEUROFIBROMATOSIS ASSOCIATION | £555k | — | 0 | below | 24.1% | no doubt |
| NMC MIDLANDS LTD | £503k | — | 0 | within | 11.0% | no doubt |
| EATING MATTERS | £356k | — | 0 | below | — | no doubt |
| MS ACTION LIMITED | £355k | — | 0 | below | — | no doubt |