MLD SUPPORT ASSOCIATION UK

Registered charity 1150542 · accounts filings on the Charity Commission register · also known as MLD SUPPORT ASSOCIATION UK1, MLD SUPPORT UK

We have prepared informative leaflets on Metachromatic Leukodystrophy (MLD), to spread awareness of the disease to medical establishments and raise awareness . We have established links with other charitable organisations who can provide complimentary services to families affected by MLD . We are advocates on behalf of affected families and have strong links to specialist centres.

Objects

1.TO ADVANCE THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF THE DIAGNOSIS, PROGRESSION, AND TREATMENT FOR ALL FORMS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.).2. TO RELIEVE THE MENTAL AND PHYSICAL SICKNESS OF PERSONS RESIDENT IN THE UNITED KINGDOM, SUFFERING FROM BEREAVEMENT OR LOSS OF A FAMILY MEMBER THROUGH METACHROMATIC LEUKODYSTROPHY (M.L.D.) BY THE PROVISION OF COUNSELLING AND SUPPORT FOR SUCH PERSONS.3. TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE TO THEIR FAMILIES; AND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE TO BONA FIDE CLINICIANS AND RESEARCH BODIES WHO ARE SEEKING THERAPEUTIC TREATMENT FOR THIS CONDITION.

Area of benefit: ENGLAND AND WALES

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Registered contact address: Thanet, South East, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that the charity has no stated reserves policy and reports no funds materially in deficit. The filing is signed by the Chair on 21.04.2026, covering the period ending 24 July 2025, but does not include financial statements or an independent audit report.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Discloses 3 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Public fundraising profile: JustGiving — MLD Support UK (matched by registered charity number).

Register events

• Received assets from another charity (13/10/2021) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Daniel Erskine
• Elizabeth Davenport
• JACQUELINE IMRIE · trustee of 1 other charity
• Nicola Jane Elson
• TWILA D'CRUZ

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MDS UK PATIENT SUPPORT GROUP.

• MDS UK PATIENT SUPPORT GROUP income £254k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.