MDS UK PATIENT SUPPORT GROUP

Registered charity 1145214 · accounts filings on the Charity Commission register · also known as MDS Support UK · also registered in Scotland as SC055405 (OSCR)

Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer. We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.

Objects

1) TO RELIEVE SICKNESS AND PRESERVE, PROMOTE AND PROTECT HEALTH OF SUFFERERS OF MYELODYSPLASTIC SYNDROME (MDS) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT EDUCATION AND PRACTICAL ADVICE.2) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC 0001IN THE UNITED KINGDOM IN ALL AREAS IN RELATION TO MDS.3) TO PROMOTE AND SUPPORT SCIENTIFIC RESEARCH INTO MDS, FOR THE TREATMENT OF MDS AND THE CARE OF SUFFERERS OF MDS, AND THOSE DISPOSED TO THE DEVELOPMENT OF SUFFERING MDS.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity reported a deficit of £53,754 for the year, reducing its unrestricted reserves to £656,510. Per the trustees' report, the charity remains a going concern with unrestricted cash assets in excess of its liabilities, budget, and contingency requirements.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Investment
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — MDS UK (matched by registered charity number).

Register events

• Received assets from another charity (01/08/2014) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Linda Patricia Holderchair
• Atashia Maria Winnie Gonsalves
• Claudia Richards
• Kes Grant
• Lynda Elizabeth Harris
• Melissa Smellie
• Pauline Maeve MacRory
• Russell Cook

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions