BEACON: FOR RARE DISEASES LTD

Registered charity 1149646 · accounts filings on the Charity Commission register · also known as FINDACURE FOUNDATION

Findacure works to:Empower patient groups to build their patient community, develop as a charity, and drive treatment research and development.Promote collaboration between rare disease stakeholders to facilitate treatment development for all.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity ended the year with a surplus of £29,318 and total funds of £220,802, supported by three long-term funding streams. However, the trustees report that the general unrestricted funds of £67,966 are below the stated policy target of three months' staff costs, which they estimate at a little over £100,000.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• Novartis — “We’ve also received funding from Novartis , BioMarin and UCB” (source page)
• BioMarin — “We’ve also received funding from Novartis , BioMarin and UCB” (source page)
• UCB — “We’ve also received funding from Novartis , BioMarin and UCB” (source page)
• BioMarin Pharmaceuticals — “Thank you to our 2025 Supporters BioMarin Pharmaceuticals” (source page)

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/01/2025)

Reported reserves equal ~1.2 months of spending — in the bottom quarter for charities its size (median 5.2 months; benchmarks).

Per its annual return, largest income source: Charitable activities (62% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 7.6% of total income — above the median for charities its size (4.9%) (benchmarks).

Trustees · trustee networks

• ANDREW MILLIGAN
• Dr ANTHONY KENT HALL
• Joanne Patra Pisani · trustee of 2 other charities
• Kamlesh Kanaiyalal Sheth
• Michael Paul Wilbur · trustee of 1 other charity
• Scott Robin Hutchings · trustee of 1 other charity
• Shannon Marie Gunn
• Sophie Costello

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).