HUNTINGTON'S DISEASE YOUTH ORGANISATION

Registered charity 1145781 · accounts filings on the Charity Commission register · also known as HDYO

We provide support and education to young people impacted by Huntington's disease.

Objects

TO RELIEVE THE NEED OF YOUNG PEOPLE IMPACTED BY HUNTINGTON'S DISEASE IN PARTICULARLY BUT NOT EXCLUSIVELY BY THE PROVISION OF INFORMATION AND SUPPORT.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Other Charitable Purposes · website · Get email alerts

Registered contact address: Nuneaton and Bedworth, West Midlands, England (from the postcode on the register)

Latest income

£43k

Latest spending

£39k

Registered

2012

Accounts read

FY2025

Financial health, per its FY2025 accounts

The charity reported a surplus of £4,007 for the year ended 31 December 2025, with total incoming resources of £42,774 and expenditure of £38,767. Unrestricted free reserves stood at £29,289, which is above the trustees' stated policy target of maintaining three to six months' expenditure. The accounts were independently examined rather than audited, with no material uncertainties or governance issues disclosed.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: between three and six month’s expenditure (held: £29k)

“It is the policy of the that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between three and six month’s expenditure.” — page 4

Per its FY2025 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Engaging external speakers at charity events policy and procedures
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Serious incident reporting policy and procedures
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures
Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Self-declared on the annual return for the financial year ending 31/12/2025

Volunteers: 30

Self-declared on the annual return for the financial year ending 31/12/2024

Volunteers: 30

Self-declared on the annual return for the financial year ending 31/12/2023

Volunteers: 30

Source: this charity’s annual returns on the Charity Commission register.

Corporate structure

Registered company of the charity Companies House 07821651 · Financial health read from its filings

The charity’s company — latest Companies House iXBRL filing (balance sheet 31 December 2025)

Average employees: 0.01

Public fundraising profile: JustGiving — Huntington's Disease Youth Organization (matched by registered charity number).

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

LEESTMA, Emily — director, appointed 29/04/2025on trustee list
JANKE, Corey — director, appointed 29/04/2025on trustee list
MCDONELL, Katherine — director, appointed 01/01/2025not on trustee list
ATKINS, Kelly — director, appointed 17/08/2022not on trustee list
HARTE, Jennifer Elizabeth — director, appointed 28/09/2021not on trustee list
CLARKE, Ashley — director, appointed 09/03/2021on trustee list
HUBBERSTEY, Hayley Elizabeth, Dr — director, appointed 01/01/2020on trustee list
BRAITHWAITE, Clare — director, appointed 01/05/2019on trustee list
HENNIG-TRESTMAN, Bonnie Lynn — director, appointed 17/09/2018on trustee list
ELLISON, Matthew John — secretary, appointed 01/04/2013

Official officers record.

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

Ashley Clarke
Clare Braithwaite
Corey Janke
Dr Bonnie Hennig-Trestman
Dr Emily Leestma
Dr Hayley Hubberstey
Katherine McDonnell
Lauren Byrne

Trustee list from the Charity Commission register (current, not historical).

Operates in: Australia · Belgium · Brazil · Canada · Chile · Colombia · Denmark · France · Germany · Ireland · Italy · New Zealand

Income and spending

Financial year end	Income	Spending
31/12/2025	£43k	£39k
31/12/2024	£35k	£35k
31/12/2023	£78k	£102k
31/12/2022	£83k	£76k
31/12/2021	£104k	£85k

Common questions

Is HUNTINGTON'S DISEASE YOUTH ORGANISATION financially healthy?

Per its FY2025 accounts: The charity reported a surplus of £4,007 for the year ended 31 December 2025, with total incoming resources of £42,774 and expenditure of £38,767. Unrestricted free reserves stood at £29,289, which is above the trustees' stated policy target of maintaining three to six months' expenditure. The accounts were independently examined rather than audited, with no material uncertainties or governance issues disclosed. Its FY2025 accounts were independently examined.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Funder	Similar charities funded	Amount to them
SKIPTON BUILDING SOCIETY CHARITABLE FOUNDATION	2	£5k
THE SIR JAMES ROLL CHARITABLE TRUST	2	£4k
THE ARDWICK TRUST	2	£400
THE FIDELITY UK FOUNDATION	1	£150k
THE TOTTENHAM GRAMMAR SCHOOL FOUNDATION	1	£61k
EAST END COMMUNITY FOUNDATION	1	£25k
THE BLAGRAVE TRUST	1	£20k
THE REED FOUNDATION	1	£12k

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with HUNTINGTONS DISEASE ASSOCIATION.

HUNTINGTONS DISEASE ASSOCIATION income £3.2m
YOUTH EMPOWERMENT MINISTRY income £70k
HARBOROUGH YOUTH AND COMMUNITY TRUST income £162k
HOXTON HEALTH income £206k
YOUTH OPTIONS income £3.8m
YOUTH AND COMMUNITY CONNEXIONS income £491k

Side by side with its peers

Charity	Income	Top pay band	Staff >£60k	Reserves vs policy	Fundraising cost	Going concern
HUNTINGTON'S DISEASE YOUTH ORGANISATION	£43k	—	0	unclear	—	no doubt
HUNTINGTONS DISEASE ASSOCIATION FY2026	£3.2m	—	—	above	—	no doubt
YOUTH EMPOWERMENT MINISTRY FY2025	£70k	—	0	above	—	no doubt
HARBOROUGH YOUTH AND COMMUNITY TRUST FY2026	£162k	—	—	unclear	—	no doubt
HOXTON HEALTH FY2025	£206k	—	0	unclear	—	no doubt
YOUTH OPTIONS FY2025	£3.8m	£60,001 - £70,000	1	unclear	—	no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.