THE DUCHENNE FAMILY SUPPORT GROUP

Registered charity 1128653 · accounts filings on the Charity Commission register

To provide a positive national support network of families affected by Duchenne Muscular Dystrophy and enable families to come together to share ideas and experiences and to enjoy social events.

Objects

1 TO PRESERVE AND PROTECT THE HEALTH OF AND RELIEVE PERSONS SUFFERING FROM DUCHENNE MUSCULAR DYSTROPHY AND THEIR FAMILIES2 TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC IN THE SUBJECT OF DUCHENNE MUSCULAR DYSTROPHY AND ITS IMPLICATIONS FOR THE FAMILIES OF THOSE SUFFERING FROM THE AFOREMENTIONED CONDITION3 TO PROMOTE RESEARCH INTO THE MANAGEMENT OF DUCHENNE MUSCULAR DYSTROPHY AND TO PUBLICISE THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING CHARITABLE RESEARCH INTO DUCHENNE MUSCULAR DYSTROPHY

Area of benefit: UNDEFINED. IN PRACTICE, NATIONAL.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Other Charitable Purposes · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity reported a surplus of £6,788 for the year ended 31 March 2025, with total unrestricted reserves of £67,457. The trustees confirm that these reserves are above their stated policy target of three months' running costs. The financial statements were prepared on a going concern basis with no material uncertainties identified.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — Duchenne Family Support Group (matched by registered charity number).

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• Jeans for Genes — “Thanks to a £2,500 grant from Jeans for Genes, we were able to fund an edition of our newsletter.” (source page)

Public profiles (found on the charity’s own website): facebook

Register events

• Received assets from another charity (08/09/2011) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Dr Stephen Henry Meechchair · trustee of 2 other charities
• Amanda Elizabeth Revell
• Catherine Virginia Parker
• Jacky Wilde
• Karen Ann Lightly
• Laura Elliott
• Sarah Wright
• Susan Berry

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).