ACTION DUCHENNE LIMITED

Registered charity 1101971 · accounts filings on the Charity Commission register · also known as PARENT PROJECT UK LIMITED · also registered in Scotland as SC043852 (OSCR)

Action Duchenne supports, empowers and equips every Duchenne & Becker Muscular Dystrophy community in their journey from diagnosis & beyond. We journey alongside communities to support, empower & advocate for them. We believe that every individual affected by Duchenne & Becker should be able to enjoy the best quality of life possible, and be supported to make informed decisions about their lives.

Objects

THE RELIEF OF PERSONS WITH DUCHENNES AND BECKER MUSCULAR DYSTROPHY THROUGH SUCH MEANS AS ARE CHARITABLE BY LAW.

Area of benefit: NOT DEFINED.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity incurred a net loss of £225,304 for the year ended 31 March 2025, with total income of £590,523. Per the trustees' report, unrestricted free reserves stood at £322,597 at year-end, which the Board considers appropriate to protect the continuity of core projects for at least six months.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by Godfrey Wilson Limited. Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Corporate structure

• Registered company of the charity Companies House 04899036

Public fundraising profile: JustGiving — Action Duchenne (matched by registered charity number).

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

• HARRISON, Claire — director, appointed 20/07/2026on trustee list
• MAIN, Marion Louise — director, appointed 14/02/2025on trustee list
• HILL, Greg — director, appointed 25/06/2024on trustee list
• MABILE, Anna — director, appointed 25/06/2024on trustee list
• PLEYDELL, Victoria Margaret, Dr — director, appointed 25/06/2024on trustee list
• SIMMONDS, Emma Rose — director, appointed 08/02/2024on trustee list

Official officers record.

Public profiles (found on the charity’s own website): facebook

Structured financials (annual return, FY ending 31/03/2025)

Reported reserves equal ~6.1 months of spending — above the median for charities its size (median 5.2 months; benchmarks).

Per its annual return, largest income source: Charitable activities (68% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 23.6% of total income — in the top quarter for charities its size (median 4.9%) (benchmarks).

Trustees · trustee networks

• Anna Mabile
• Claire Harrison
• Dr Victoria Pleydell
• Emma Rose Simmonds
• Greg Hill
• Marion Main

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with HARRISON'S FUND LTD.

• HARRISON'S FUND LTD income £97k
• JOINING JACK income £890k
• DUCHY HEALTH CHARITY LIMITED income £278k
• ALEX'S WISH income £369k
• ACTION ON DISABILITY income £1.4m
• MUSCULAR DYSTROPHY GROUP OF GREAT BRITAIN AND NORTHERN IRELAND income £7.9m

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.