THE FRAGILE X SOCIETY
Registered charity 1127861 · accounts filings on the Charity Commission register · also registered in Scotland as SC047332 (OSCR)
Fragile X is a family of inherited genetic conditions, including Fragile X Syndrome. We provide information and practical guidance to support and empower individuals and families living with Fragile X We educate and inform public and professionals about Fragile X, to raise awareness and understanding and improve careWe encourage and publicise research into Fragile X
Causes: Education/training · Disability · website · Get email alerts
Financial health, per its FY2026 accounts
The accounts state that the charity ended the year with a surplus and unrestricted reserves of £185,319, which exceeds the trustees' policy target of three months of normal unrestricted operating expenditure. However, the trustees note that income from donations and fundraising has been declining and highlight economic uncertainties arising from the conflict in the Persian Gulf as a risk to future sustainability.
Automated summary of the FY2026 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Reserves policy: three months of normal unrestricted operating expenditure (held: £185k)
“The Trustees aim to maintain a general reserve a level that at least equates to approximately three months of normal unrestricted operating expenditure.” — page 11
Per its FY2026 accounts as filed with the Charity Commission.
Related-party transaction: Trustees' expenses reimbursed
“£117 (2025: £489) was reimbursed to trustees for expenses incurred.” — page 22
Per its FY2026 accounts as filed with the Charity Commission.
Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.
Public fundraising profile: JustGiving — The Fragile X Society (matched by registered charity number).
Public profiles (found on the charity’s own website): facebook · instagram
- Steve Harrischair
- Andrew Jaques
- Andy Clarke
- Anne Eccleshall
- Erin Williams
- Jonny Cobbold
- Lily Pattison
- Michelle Flynn · trustee of 1 other charity
- Molly Jaques
- Patricia Eleanor Grace Pattison
- Tim Eccleshall · trustee of 3 other charities
- Tim Eccleshall · trustee of 3 other charities
Trustee list from the Charity Commission register (current, not historical).
Operates in: Northern Ireland · Scotland · Throughout England And Wales
Income and spending
Common questions
Is THE FRAGILE X SOCIETY financially healthy?
Per its FY2026 accounts: The accounts state that the charity ended the year with a surplus and unrestricted reserves of £185,319, which exceeds the trustees' policy target of three months of normal unrestricted operating expenditure. However, the trustees note that income from donations and fundraising has been declining and highlight economic uncertainties arising from the conflict in the Persian Gulf as a risk to future sustainability. Its FY2026 accounts were independently examined.
Who funds THE FRAGILE X SOCIETY?
Funders whose own accounts filings name THE FRAGILE X SOCIETY as a grant recipient include CHAPMAN CHARITABLE TRUST.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
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Side by side with its peers
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