Alex, The Leukodystrophy Charity
Registered charity 1106008 · accounts filings on the Charity Commission register · also known as ALD LIFE · also registered in Scotland as SC051539 (OSCR)
A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.
Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts
Financial health, per its FY2025 accounts
The accounts state that unrestricted reserves were £201,986 at year-end, which is below the charity's stated policy target of approximately £260,000 (three months of operating costs). Despite an unrestricted deficit for the year and rising salary costs, the trustees and auditors confirm that the charity has adequate resources to continue as a going concern with no material uncertainties identified.
Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Largest income source: Donations from individuals (32% of income)
“Donations from individuals – £132,483 (32%) (2024: 34%)” — page 8
Per its FY2025 accounts as filed with the Charity Commission.
Fundraising cost ratio: 19.0% of fundraised income, as disclosed
“Total expenditure (excluding retail) for the year was £374,428 (2024: £328,735). Of this 71% (2024: 67%) was spent on charitable activities, 19% (2024:17%) on fundraising and 10% (2024: 16%) on support costs.” — page 8
Per its FY2025 accounts as filed with the Charity Commission.
Reserves policy: three months of operating costs (around £260,000) (held: £202k)
“The charity’s policy is to maintain unrestricted reserves at a level sufficient to cover approximately three months of operating costs (around £260,000).” — page 9
Per its FY2025 accounts as filed with the Charity Commission.
Accounts audited by Richard Place Dobson Services Limited. Discloses 5 of 6 completeness components.
Corporate structure
Public fundraising profile: JustGiving — Alex, The Leukodystrophy Charity (matched by registered charity number).
Company officers (Companies House)
Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.
- WALKER, Sophia Elizabeth — director, appointed 27/05/2026on trustee list
- HORTH, Sharon — director, appointed 27/05/2026on trustee list
- SINGH, Rahul Raman, Dr — director, appointed 01/09/2025on trustee list
- DALTON, Thomas Cooper — director, appointed 12/05/2024on trustee list
- SHIROI, Nick James Leopold — director, appointed 16/04/2024on trustee list
- SARIG, Gil — director, appointed 04/01/2024on trustee list
- SANDYS-WINSCH, Tulsi — director, appointed 11/10/2023on trustee list
- HADFIELD-HUDSON, Emma Jane — director, appointed 11/02/2023on trustee list
- IDAFAR, Iraj — director, appointed 06/02/2022on trustee list
- MILNE, Linda Christine — director, appointed 30/01/2015on trustee list
Official officers record.
Property (HM Land Registry)
4 registered titles in England and Wales held by the charity’s company or corporate body (0 freehold). All charity-held property. Contains HM Land Registry data © Crown copyright, OGL v3.0.
Structured financials (annual return, FY ending 30/06/2025)
Cost of raising funds
£724k
Reported reserves equal ~2.4 months of spending — below the median for charities its size (median 4.8 months; benchmarks).
Per its annual return, largest income source: Other trading activities (66% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.
Per its annual return, cost of raising funds: 67.2% of total income — above the 90th percentile for charities its size (median 5.2%) (benchmarks).
Register events
- Received assets from another charity (28/10/2024) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Dr Rahul Raman Singh
- Emma Jane Hadfield-Hudson
- Gil Sarig · trustee of 1 other charity
- Iraj Idafar
- LINDA CHRISTINE MILNE
- Nick James Leopold Shiroi
- Sharon Horth
- Sophia Walker
- Thomas Dalton
- Tulsi Sandys-Winsch
Trustee list from the Charity Commission register (current, not historical).
Operates in: Afghanistan · Akrotiri · Albania · Algeria · American Samoa · Andorra · Angola · Anguilla · Antarctica · Antigua And Barbuda · Argentina · Armenia
Income and spending
Common questions
Is Alex, The Leukodystrophy Charity financially healthy?
Per its FY2025 accounts: The accounts state that unrestricted reserves were £201,986 at year-end, which is below the charity's stated policy target of approximately £260,000 (three months of operating costs). Despite an unrestricted deficit for the year and rising salary costs, the trustees and auditors confirm that the charity has adequate resources to continue as a going concern with no material uncertainties identified. Its FY2025 accounts were audited by Richard Place Dobson Services Limited.
Who funds Alex, The Leukodystrophy Charity?
Funders whose own accounts filings name Alex, The Leukodystrophy Charity as a grant recipient include THE ANTHONY AND ELIZABETH MELLOWS CHARITABLE SETTLEMENT, THE WO STREET CHARITABLE FOUNDATION, R G HILLS CHARITABLE TRUST, LONDON CATALYST, BRITISH HUMANE ASSOCIATION.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.
Charities like this
Semantically similar by activities and financial character, from our analysed corpus. Compare with ALEX'S WISH.
Side by side with its peers
Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.