TOFS

Registered charity 327735 · accounts filings on the Charity Commission register · also known as T O F S, TRACHEO-OESOPHAGEAL FISTULA SUPPORT

Disseminating information to our membership via leaflets, our TOF Book, periodic newsletters, social media and website. Running conferences and other gatherings where patients and their families can learn about the condition, its causes, treatment and ongoing management. Provision of pastoral support. Liaising and collaborating, where appropriate, with medical professionals and researchers.

Objects

THE OBJECT FOR WHICH THE ASSOCIATION IS ESTABLISHED IS TO PROVIDE RELIEF TO IN NEED INDIVIDUALS (HEREINAFTER REFERRED TO AS “TOF INDIVIDUALS”) SUFFERING FROM TRACHEO OESOPHAGEAL FISTULA, OESOPHAGEAL ATRESIA AND OESOPHAGEAL AND RELATED DISORDERS INCLUDING THE VATER ASSOCIATION (HEREINAFTER COLLECTIVELY REFERRED TO AS "OESOPHAGEAL DISORDERS”) AS WELL AS THE PARENTS OR GUARDIANS OF SUCH TOF INDIVIDUALS BY:PROVIDING OR PAYING FOR ITEMS, SERVICES OR FACILITIES WHICH ARE CALCULATED TO ALLEVIATE THE SUFFERING OR ASSIST THE RECOVERY OF TOF INDIVIDUALS WHERE SUCH ITEMS, SERVICES OR FACILITIES ARE NOT READILY AVAILABLE TO THEM FROM OTHER SOURCES;PROMOTING CONTACT BETWEEN THE FAMILIES OF TOF INDIVIDUALS SUFFERING FROM OESOPHAGEAL DISORDERS WITH A VIEW TO SHARING MANAGEMENT PROBLEMS AND SOLUTIONS; ANDCOLLECTING AND DISSEMINATING INFORMATION CONCERNING OESOPHAGEAL DISORDERS IN THE CARE AND TREATMENT THEREOF

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Latest income

£223k

Latest spending

£190k

Registered

1988

Accounts read

FY2024

Financial health, per its FY2024 accounts

The accounts state that total income reached a record level of £222,536, driven by significant growth in corporate donations and fundraising events. Expenditure increased to £193,716, resulting in a net incoming resource of £28,820 and total unrestricted funds of £280,385. The trustees note that while reserves are significantly above the policy target of one year's operating expenses, this excess is expected to reduce as expenditure is anticipated to exceed income in the coming years.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: one year of normal operating expenses (held: £280k)

“in 2020 the Trustees raised the minimum level of reserves to an amount sufficient to cover all normal operating expenses for a full year. The reserves policy has not been changed since.”

Per its FY2024 accounts as filed with the Charity Commission.

Related-party transaction: IT services purchased from Altido, whose managing director is the son-in-law of a former trustee.

“During the year, TOFS has bought IT services amounting to £390 (2023 - £1,228) from Altido (formerly CRM Labs). The managing director of this firm is the son-in-law of the late Dennis Harvey, who served as a Trustee until March 2022.” — page 24

Per its FY2024 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

Bullying and harassment policy and procedures
Complaints handling
Complaints policy and procedures
Conflicting interests
Financial reserves policy and procedures
Internal charity financial controls policy and procedures
Internal risk management policy and procedures
Investing charity funds policy and procedures
Investment
Risk management
Safeguarding policy and procedures
Safeguarding vulnerable beneficiaries
Social media policy and procedures
Trustee conflicts of interest policy and procedures
Trustee expenses policy and procedures

Public fundraising profile: JustGiving — TOFS (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

Clare Louise Johns
DUNCAN CARL JACKSON · trustee of 1 other charity
Darrell Hill
Katrina Marie Tyler · trustee of 1 other charity
Tamasine Swan
To'neill Bala

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/12/2024	£223k	£190k
31/12/2023	£150k	£172k
31/12/2022	£152k	£184k
31/12/2021	£189k	£132k
31/12/2020	£120k	£93k

Common questions

Is TOFS financially healthy?

Per its FY2024 accounts: The accounts state that total income reached a record level of £222,536, driven by significant growth in corporate donations and fundraising events. Expenditure increased to £193,716, resulting in a net incoming resource of £28,820 and total unrestricted funds of £280,385. The trustees note that while reserves are significantly above the policy target of one year's operating expenses, this excess is expected to reduce as expenditure is anticipated to exceed income in the coming years. Its FY2024 accounts were independently examined.

Who funds TOFS?

Funders whose own accounts filings name TOFS as a grant recipient include THE ROGER DE HAAN CHARITABLE TRUST.

Known funders

Grants to this charity found in funders’ own accounts filings.

Funder	Year	Amount	Purpose (as stated by the funder)
THE ROGER DE HAAN CHARITABLE TRUST	FY2022	£100	Health and Welfare

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
The National Lottery Community Fund	12/08/2010	£7k	TOFS- Into Teens and Adulthood
The National Lottery Community Fund	08/09/2006	£4k	Family to Family Support Network