THE BRITTLE BONE SOCIETY
The Brittle Bone Society (BBS) exists to support those living with Osteogenesis Imperfecta (OI). Our core purposes are to: provide information, advice support and equipment to anyone affected by OI; build public awareness of the condition and increase the profile of the BBS in the NHS service and general population; promote the BBS to hospitals,support groups, individuals and anyone affected by OI
Objects
TO ADVANCE RESEARCH INTO THE CAUSES, INHERITANCE AND MANAGEMENT OF OSTEOGENESIS IMPERFECTA AND SIMILAR DISORDERS AND TO PUBLISH THE RESULTS OF SUCH RESEARCH AND TO RELIEVE PERSONS SUFFERING FROM SUCH DISORDERS.
Policies the charity declares
- Complaints handling
- Conflicting interests
- Paying staff
- Risk management
- Safeguarding vulnerable beneficiaries
- Volunteer management
From the charity’s annual return (Part A, self-declared)
Self-declared on the annual return for the financial year ending 31/03/2022
- Volunteers: 20
- Grant-making is its main activity
Structured financials (annual return, FY ending 31/03/2022)
Trustees
- ELAINE HEALEYchair
- ANGELA STEWART BA HONS
- Dominic Hyams
- Elizabeth Robertson
- JOHN PHILLIPS
- Professor Margaret Smith OBE
- Professor Nick Bishop
- ROBERT WILLIAM GORDON FCA
- Thines Ganeshamoorthy
- YVONNE GRANT
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2026 | £0 | £0 |
| 31/03/2025 | £0 | £0 |
| 31/03/2024 | £0 | £0 |
| 31/03/2023 | £0 | £0 |
| 31/03/2022 | £510k | £253k |
Common questions
Who funds THE BRITTLE BONE SOCIETY?
Funders whose own accounts filings name THE BRITTLE BONE SOCIETY as a grant recipient include MOTABILITY, THE LIGHT FUND COMPANY, THE TIMOTHY FRANEY CHARITABLE FOUNDATION, THE WO STREET CHARITABLE FOUNDATION, G M MORRISON CHARITABLE TRUST.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| MOTABILITY | FY2025 | £396k | Wheelchair Sector grant |
| THE LIGHT FUND COMPANY | FY2023 | £5k | |
| THE TIMOTHY FRANEY CHARITABLE FOUNDATION | FY2025 | £5k | |
| THE WO STREET CHARITABLE FOUNDATION | FY2021 | £4k | |
| G M MORRISON CHARITABLE TRUST | FY2025 | £3k | |
| G M MORRISON CHARITABLE TRUST | FY2024 | £3k | |
| G M MORRISON CHARITABLE TRUST | FY2023 | £3k | |
| PILKINGTON CHARITIES FUND | FY2024 | £2k | |
| G M MORRISON CHARITABLE TRUST | FY2022 | £1k | |
| THE HOSPITAL SATURDAY FUND | FY2021 | amount not stated | wheelchair |
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 01/12/2014 | £10k | Patient Workshops (Two to be held in Scotland over a year) |
| The National Lottery Community Fund | 28/11/2013 | £10k | Voice 2014, a youth event for people with Osteogenesis Imperfecta (OI) |
| The National Lottery Community Fund | 08/11/2012 | £10k | VOICE Ireland |
| The National Lottery Community Fund | 18/08/2011 | £9k | VOICE in Scotland- an event for young people with OI |