SOCIETY FOR RESEARCH INTO HYDROCEPHALUS AND SPINA BIFIDA

Registered charity 256115 · accounts filings on the Charity Commission register · also known as SRHSB

The Society's objectives are to further the research and knowledge into prevention and management of Hydrocephalus and Spina Bifida. It has over 190 members from 29 different countries, and holds an annual scientific meeting (ASM) every year where research and knowledge are shared and disseminated. It is active in supporting folate fortification of flour to prevent neural tube defects.

Objects

TO ADVANCE EDUCATION AND PROMOTE RESEARCH INTO HYDROCEPHALUS AND SPINA BIFIDA AND FOR THIS PURPOSE ONLY TO BRING TOGETHER WORKERS IN DIFFERENT FIELDS WHO HAVE A COMMON INTEREST IN HYDROCEPHALUS AND SPINA BIFIDA SO THAT THEY MAY BE AIDED IN THEIR JOINT ENDEAVOUR TO PREVENT, CURE,OR ALLEVIATE THESE CONDITIONS.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2024 accounts

The accounts state that the charity reported a surplus for the year ended 31 December 2024, with total income of £33,340 against expenditure of £7,747. This resulted in an increase in cash assets and a total asset base of £92,847, which the trustees describe as a solid foundation to meet objectives. The income risk was assessed as minimal, and the charity maintains reserves sufficient to cover potential losses from its Annual Meeting.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Social media policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• Richard and Jennifer Waite — “The Executive Committee ofthe SRHSB is delighted to announce the winners of the inaugural competition for the Waite Hydrocephalus Research…” (source page)
• Integra — “Through the generosity of an Integra Educational grant, this SRHSB/Integra Program will support travelling fellowships for young graduate sc…” (source page)
• Harry’s Hydrocephalus Awareness Trust — “SRHSB gratefully acknowledges the support and partnership with Harry’s Hydrocephalus Awareness Trust , which supported a student project in…” (source page)

Trustees · trustee networks

• Andy Wynd MBE MIoD
• Dr Jo Glazier
• Dr William Singleton PhD FRCS
• IAN POPLE MD FRCS
• Prof John Pickard CBE
• Prof Pat McAllister

Trustee list from the Charity Commission register (current, not historical).

Operates in: Canada · Denmark · Germany · Scotland · Spain · Sweden · Throughout England And Wales · United States

Income and spending

Common questions