THE PAGET'S DISEASE OF BONE ASSOCIATION

Registered charity 1213575 · accounts filings on the Charity Commission register

The Paget's Disease of Bone Association is the only UK charity dedicated to supporting individuals affected by Paget's disease of bone. It offers information and support to patients, carers and health professionals, funds research and raises awareness about the condition.

Objects

TO PRESERVE AND PROTECT THE HEALTH OF PERSONS SUFFERING FROM PAGET'S DISEASE OF BONE AND THEIR FAMILIES BY:A) PROVIDING INFORMATION AND SUPPORT, B) RAISING AWARENESS ABOUT PAGET'S DISEASE OF BONE BOTH WITHIN THE MEDICAL AND ALLIED HEALTH PROFESSIONS, AND AMONGST THE GENERAL PUBLIC, C) SUPPORTING AND FUNDING RESEARCH PROJECTS IN THE FIELD OF PAGET'S DISEASE OF BONE OR ITS TREATMENT,(D) WORKING AND COORDINATING WITH OTHER ORGANISATIONS (CHARITABLE, VOLUNTARY, GOVERNMENTAL OR OTHERWISE) TO SUPPORT THOSE AFFECTED BY RARE BONE DISORDERS; AND (E) UNDERTAKING ANY OTHER ACTIONS AND/OR OBJECTS IN SUPPORT OF PERSONS SUFFERING FROM PAGET'S DISEASE OR MAY BE AT RISK OF SUFFERING FROM PAGET'S DISEASE, THEIR FAMILIES AND CARERS.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

We have not yet analysed this charity’s accounts. Register data shown below.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Complaints handling
• Conflicting interests
• Investment
• Risk management
• Volunteer management

Trustees · trustee networks

• Professor Stuart Hamilton Ralstonchair · trustee of 2 other charities
• Alan Martin · trustee of 1 other charity
• Amanda Sherwood · trustee of 1 other charity
• Dr Faizanur Rahman · trustee of 1 other charity
• Dr Sheelagh Farrow · trustee of 1 other charity
• Eve Marcia Berry · trustee of 1 other charity
• Kely Burman · trustee of 1 other charity
• Mohamed El Erian
• Professor Jeremy Mark Wilkinson · trustee of 1 other charity
• Professor Robert Graham Goodwin Russell · trustee of 1 other charity
• Robert Layfield · trustee of 1 other charity

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending