PRIMARY CILIARY DYSKINESIA SUPPORT UK

Registered charity 1207340 · accounts filings on the Charity Commission register · also known as PCD SUPPORT UK

1.Provide support to patients and their carers who have, or are suspected of having, PCD 2.Bring PCD to the attention of medics and provide an up to date information service for them and the general public. 3.To promote research to aid diagnosis and treatment of patients with PCD. 4.Support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care.

Objects

FOR THE PUBLIC BENEFIT TO PRESERVE AND PROTECT THE HEALTH AND TO RELIEVE THE NEEDS OF PATIENTS, WHO HAVE OR ARE SUSPECTED OF HAVING PRIMARY CILIARY DYSKINESIA (PCD) AND THEIR CARERS IN THE UNITED KINGDOM [INCLUDING SCOTLAND AND NORTHERN IRELAND] IN PARTICULAR BUT NOT EXCLUSIVELY BY:- RAISING AWARENESS OF PCD BY PROVIDING INFORMATION TO THE MEDICAL COMMUNITY AND THE GENERAL PUBLIC. - ENCOURAGING THE ADVANCEMENT OF MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF PCD, PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Registered contact address: Dorset, South West, England (from the postcode on the register)

We have not yet analysed this charity’s accounts. Register data shown below.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Safeguarding policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Trustees · trustee networks

• Alexander Simon Polakchair
• Abdullah Ihsan · trustee of 1 other charity
• Gerald Paul Rowe-Ham
• Katie Vance
• Natasha Mary Bellwood

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England

Income and spending