GAND AID UK
The aims of the organisation are to raise funds through sponsorships and donations in both raising and increasing the awareness and effects of GAND. The focus will be providing advocacy and support to families receiving a diagnosis and setting up a UK GAND community to help tackle the challenges that families will experience.
Objects
THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF HEALTH FOR THE PUBLIC BENEFIT OF PEOPLE AFFECTED BY OR SUFFERING FROM GATAD2B-ASSOCIATED NEURODEVELOPMENTAL DISORDER (GAND) AND IN PARTICULAR BUT WITHOUT LIMITATION BY:• PROVIDING ADVICE, EDUCATION AND SUPPORT FOR SUCH PERSONS AND THEIR FAMILIES, INCLUDING THE PROVISION OF SERVICE DOGS• RAISING AWARENESS ABOUT GAND AND PROVIDING INFORMATION AND ADVICE TO MEMBERS OF THE MEDICAL PROFESSION• FUNDING RESEARCH INTO GAND INCLUDING EARLY IDENTIFICATION AND POSSIBLE TREATMENT
Policies the charity declares
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Conflicting interests
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Risk management
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Trustees
- gene Selby Selfchair
- Alexandra Johnson OBE
- Brian Carney
- Rebecca Selby
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/03/2025 | £11k | £5k |
| 31/03/2024 | £19k | £59 |