FOWLER'S SYNDROME UK
THE ADVANCEMENT OF EDUCATION AMONGST THE MEDICAL PROFESSION AND THE PUBLIC ON THE SYMPTOMS, CAUSES AND TREATMENT OF FOWLERS SYNDROME LIVING IN ENGLAND AND WALES BY OFFERING SUPPORT TO ANYONE CURRENTLY LIVING WITH THIS CONDITION, IN PARTICULAR THROUGH RAISING AWARENESS AND MEDICAL RESEARCH INTO THE CAUSES, COMPLICATIONS, TREATMENTS, MEDICATIONS AND RESEARCH FOR THIS CONDITION.
Objects
THE OBJECTS ARE:THE ADVANCEMENT OF EDUCATION AMONGST THE MEDICAL PROFESSION AND THE PUBLIC ON THE SYMPTOMS, CAUSES AND TREATMENT OF FOWLER’S SYNDROME LIVING IN ENGLAND AND WALES BY OFFERING SUPPORT TO ANYONE CURRENTLY LIVING WITH THIS CONDITION, IN PARTICULAR THROUGH RAISING AWARENESS AND MEDICAL RESEARCH INTO THE CAUSES, COMPLICATIONS, TREATMENTS, MEDICATIONS AND RESEARCH FOR THIS CONDITION.
Financial health, per its FY2024 accounts
The accounts state that total income for the year was £98,652 with expenditure of £63,925, resulting in a net movement in funds of £34,727. The charity holds unrestricted cash reserves of £76,300 at year-end, which the trustees describe as a reasonable buffer to maintain ongoing solvency. The filing confirms compliance with the Charities Act 2022 and notes that the charity is prepared on a going-concern basis with no material uncertainties identified.
What the accounts disclose
“Income was primarily driven by grants (£90,542), all of which generously came from The National Lottery Reaching Communities Fund.”
“The charity’s cash reserve policy focuses on keeping a reasonable and sufficient buffer at any time and the charity will not commit to long term expenses for which funding will be considered highly uncertain.” — page 9
Policies the charity declares
- Bullying and harassment policy and procedures
- Complaints handling
- Complaints policy and procedures
- Engaging external speakers at charity events policy and procedures
- Financial reserves policy and procedures
- Internal charity financial controls policy and procedures
- Internal risk management policy and procedures
- Paying staff
- Safeguarding policy and procedures
- Safeguarding vulnerable beneficiaries
- Serious incident reporting policy and procedures
- Social media policy and procedures
- Trustee conflicts of interest policy and procedures
- Trustee expenses policy and procedures
- Volunteer management
Trustees
- Anne Ingrid Hoeritzauerchair
- Caroline Petersen
- Hannah Marie Edwards
- Konstantinos Charitopoulous
- Matthew Coombe
- Rory James Layton Knighton
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 31/12/2024 | £99k | £64k |
| 31/12/2023 | £30k | £28k |
| 31/12/2022 | £41k | £897 |
Common questions
Is FOWLER'S SYNDROME UK financially healthy?
Per its FY2024 accounts: The accounts state that total income for the year was £98,652 with expenditure of £63,925, resulting in a net movement in funds of £34,727. The charity holds unrestricted cash reserves of £76,300 at year-end, which the trustees describe as a reasonable buffer to maintain ongoing solvency. The filing confirms compliance with the Charities Act 2022 and notes that the charity is prepared on a going-concern basis with no material uncertainties identified. Its FY2024 accounts were independently examined.
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 22/04/2024 | £272k | Core costs for Fowler's Syndrome UK |