XLH UK

Registered charity 1196811 · accounts filings on the Charity Commission register

XLH UK exists to help those with X-linked hypophosphatemia (XLH) and their families living in the UK. We organise events and maintain a website with resources and news. We raise awareness by sharing stories of the lived experience. We also contribute to research into the multiple aspects of this rare condition, to better inform the development of new treatments and standards for best care.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

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Trustees · trustee networks

• Sarah Mitsonchair
• Claire Jayne Lewis
• David Mark Bryan · trustee of 1 other charity
• Dean William Derek Fletcher
• Jennifer Joan Carrington-Elson
• Oliver Gardiner
• Sally Shaw

Trustee list from the Charity Commission register (current, not historical).

Operates in: Guernsey · Isle Of Man · Jersey · Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).