THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO
We are a small charity that supports families living with Smith-Magenis syndrome (SMS), a rare condition that occurs once in every 15-25,000 births. People with SMS have complex needs and behaviours, along with a learning disability. Our aim is to provide all caregivers and professionals with the knowledge and understanding to feel empowered and confident to support a person with SMS.
Financial health, per its FY2024 accounts
The accounts state that the charity operated at a deficit of £3,069 for the year, reducing its unrestricted cash reserves. The trustees report that unrestricted cash reserves currently cover 6 months of core operating costs, which is below the stated policy target of 12 months. The charity is working to increase its cash reserves to the targeted level.
What the accounts disclose
“£48,005 came through charitable donations, legacy, and general fundraising activities”
“Income raised by the SMS community totalled £25,102. Expenses for fundraising activities relate to expenditure on sports event entry fees, fundraising merchandise and donation platform fees and subscriptions and totalled £2,949” — page 13
“The intention of the Foundation is to seek to retain a minimum of 12 months of core operating expenditure as the basis of its cash reserves, excluding restricted funding for projects.” — page 6
“The charity’s insurance policy includes Trustee Indemnity for all its trustees. No other remuneration was paid to the trustees or to any connected persons during the year.” — page 11
Register events
- Received assets from another charity (30/12/2021)
Trustees
- Hazel Wotherspoonchair
- Alistair Hudson
- Alvar de Wolff
- Andrew Bird
- Emma Riddell
- Jacqueline Jenkins
- Jayne Marie Dainty
- Laurie Grainger
- Michael Pearson
- William Stevenson
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 30/06/2024 | £82k | £85k |
| 30/06/2023 | £83k | £90k |
| 30/06/2022 | £106k | £135k |
| 30/06/2021 | £78k | £98k |
| 30/06/2020 | £13k | £8k |
Common questions
Is THE SMITH-MAGENIS SYNDROME (SMS) FOUNDATION UK CIO financially healthy?
Per its FY2024 accounts: The accounts state that the charity operated at a deficit of £3,069 for the year, reducing its unrestricted cash reserves. The trustees report that unrestricted cash reserves currently cover 6 months of core operating costs, which is below the stated policy target of 12 months. The charity is working to increase its cash reserves to the targeted level. Its FY2024 accounts were independently examined.
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 23/05/2023 | £9k | SMS rare disease support Scotland |
| UK government | 11/09/2020 | £9k | Coronavirus Community Support Fund |
| The National Lottery Community Fund | 15/04/2020 | £8k | SMS COVID-19 Community Cohesion |