THE HEREDITARY SPASTIC PARAPLEGIA SUPPORT GROUP

Registered charity 1181539 · accounts filings on the Charity Commission register · also known as HSP SUPPORT GROUP

The charity promotes meetings for those with HSP to meet others. It gives grants to individuals to alleviate the effects of HSP. It supports research into the condition. It provides via its web site and Newsletters information about HSP and management of the condition.

Objects

THE OBJECTS ARE:-1)TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERS OF HSP IN GREAT BRITAIN AND NORTHERN IRELAND THROUGH THE PROVISION OF FINANCE, ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE;2)TO ADVANCE THE EDUCATION OF PROFESSIONALS AND THE GENERAL PUBLIC IN ALL AREAS RELATING TO HSP.IN FURTHERANCE OF THE OBJECTS THE ORGANISATION MAY PROVIDE SUPPORT TO ACTIVITIES WHOSE OUTCOME MAY LEAD TO BENEFITS TO THOSE WITH HSP.

Area of benefit: IN GREAT BRITAIN AND NORTHERN IRELAND

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity had a surplus of £37,555.24 for the year, bringing net assets to £155,105.87 held entirely in bank accounts. The trustees consider the group financially sound, noting that significant funds are held beyond their stated reserve policy target of around £15,000.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Risk management
• Safeguarding policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Public fundraising profile: JustGiving — Hereditary Spastic Paraplegia Support Group (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Register events

• Received assets from another charity (08/02/2021) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Estelle Marshallchair
• Adam Lawrence
• DAVID HARRIS
• Helen Louise Payne
• Michael Cain
• Michael Thomas Payne
• Mitesh Patel
• Phil Bungay

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions