ALK POSITIVE LUNG CANCER (UK)

Registered charity 1181171 · accounts filings on the Charity Commission register · also registered in Scotland as SC053692 (OSCR)

We provide a support network in the UK for patients with ALK-positive lung cancer and their families. We provide advice and information so that patients can be empowered to have meaningful conversations with their healthcare professionals. We advocate on their behalf at a national level so that patients receive a high level of care wherever they live in the UK

Objects

TO RELIEVE SICKNESS AND TO PRESERVE AND PROTECT GOOD HEALTH OF UK ANAPLASTIC LYMPHOMA KINASE (ALK) POSITIVE LUNG CANCER PATIENTS BY:-A. PROVIDING AN INFORMATION RESOURCE, IN PARTICULAR ACCESS TO INFORMATION ABOUT LATEST DEVELOPMENTS AND CLINICAL TRIALS;B. IDENTIFYING AND LOCATING UK ALK PATIENTS AND OFFERING SUPPORT AND GUIDANCE ON THE LOCATION OF UK ALK SPECIALISTS AND SERVICES;C. LIAISING WITH AND INFLUENCING DECISION MAKERS, E.G. NICE, NHS, DVLA;D. RAISING AWARENESS OF ALK LUNG CANCER, PARTICULARLY AMONGST THE MEDICAL PROFESSION SO AS TO PROMOTE THE BEST TREATMENT FOR PATIENTS;E. LIAISING WITH RELEVANT ORGANISATIONS, IN PARTICULAR ROY CASTLE LUNG CANCER FOUNDATION AND THE PHARMACEUTICAL INDUSTRY;F. RAISING FUNDS FOR THE ABOVE PURPOSES.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Financial health, per its FY2024 accounts

The accounts state that the charity held unrestricted reserves of £177,023 at the end of the year, representing a year-on-year increase of £68,000 driven by increased fundraising and donations. The trustees note uncertainty regarding future conference funding and the need to employ a part-time CEO, indicating an expectation to draw on these balances in future years. The charity describes itself as risk averse, ensuring sufficient funds are held before committing to expenditure.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Internal charity financial controls policy and procedures
• Investing charity funds policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Public fundraising profile: JustGiving — ALK Positive UK (matched by registered charity number).

Public profiles (found on the charity’s own website): instagram

Trustees · trustee networks

• Debra Louise Montaguechair
• Andrew Thomson McKay
• Geoffrey Paul Otterman
• Graham Herbert Lavender
• Rachel Rowan
• Traceydawn White · trustee of 1 other charity

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with JIACAI FOUNDATION.

• JIACAI FOUNDATION income £210k
• Asthma and Lung UK income £16.1m
• BRITISH THORACIC ONCOLOGY GROUP income £1.7m
• ASSOCIATION OF CANCER PHYSICIANS income £101k
• CANCER SUPPORT UK (CSUK) income £599k
• ROY CASTLE LUNG CANCER FOUNDATION income £5.5m

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.