GOPI3KS (GENETIC OVERGROWTH PI3K SUPPORT)

Registered charity 1176289 · accounts filings on the Charity Commission register

1. The prevention or relief of poverty for the public benefit of persons in need with PIK Related Overgrowth Spectrum (PROS) worldwide in particular by making grants to them. 2. To advance the education of the general public and persons with PROS in any part of the world relating to PROS in particular but not exclusively by raising awareness, providing information and education materials.

Objects

THE OBJECTS OF THE CIO ARE1. THE PREVENTION OR RELIEF OF POVERTY FOR THE PUBLIC BENEFIT OF PERSONS IN NEED WITH PIK RELATED OVERGROWTH SPECTRUM (PROS) IN PARTICULAR BY MAKING GRANTS TO THEM.2. TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AND PERSONS WITH PROS IN ANY PART OF THE WORLD RELATING TO PROS IN PARTICULAR BUT NOT EXCLUSIVELY BY RAISING AWARENESS, PROVIDING INFORMATION AND EDUCATIONAL MATERIALS.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity held unrestricted reserves of £15,189 and restricted funds of £1,542 at the end of the period. The trustees note that the charity holds a policy on reserves which can be viewed on their website, though no specific target amount or duration is stated in the filing. Total income for the year was £31,022, primarily from donations and grants, with total expenditure amounting to £26,167.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• UK Research and Innovation — “A researcher from the University of Dundee has been awarded a UKRI (UK Research and Innovation) Future Leaders Fellowship to investigate cel…” (source page)
• Medical Research Council — “We are delighted to announce that a team of UK-based researchers has secured £623,000 in new funding from the Medical Research Council to tr…” (source page)

Public profiles (found on the charity’s own website): instagram

Trustees · trustee networks

• MANDY SELLARSchair
• Amanda Jane Kenyon
• Katie Louise Kavannah
• SUSAN JANE HARPER

Trustee list from the Charity Commission register (current, not historical).

Operates in: Australia · Denmark · India · Scotland · Sweden · Throughout England And Wales · Turkey · United States

Income and spending

Common questions