LAM ACTION

Registered charity 1167610 · accounts filings on the Charity Commission register

LAM Action?s main objectives are to: provide support and information for those with lymphangioleiomyomatosis (?LAM?) and their families; support research which furthers understanding of LAM; increase awareness amongst health professionals about LAM and promulgate good clinical practice for its management; and share research, clinical and patient support experience in the UK and overseas.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Latest income

£89k

Latest spending

£58k

Registered

2016

Accounts read

FY2024

Financial health, per its FY2024 accounts

The accounts state that total income decreased to £89,392 in 2024 from £102,582 in 2023, primarily due to timing variances in Gift Aid and a reduction in donations. Despite this, the charity generated a net income of £31,576 and held cash reserves of £280,598 at year-end, which significantly exceeds its stated policy target of 12 months' operating expenditure. The charity operates with only one paid employee, relying on volunteers for all other activities.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: 12 months' operating expenditure (held: £281k)

“The trustees endeavour to maintain cash reserves equal to at least 12 months' operating expenditure.”

Per its FY2024 accounts as filed with the Charity Commission.

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Public fundraising profile: JustGiving — LAM Action (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Register events

Received assets from another charity (20/04/2017) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

Alison Hilary Bronwen Merritt-Collins
Clare Elizabeth Lyon
DAVID ARTHUR MERCER
GILLIAN ELIZABETH HOLLIS
JOHN DAVID WOOD
Joanne Patra Pisani · trustee of 2 other charities
KELLY VANCE
PROFESSOR SIMON RICHARD JOHNSON
SARAH LOUISE SHARPLES
Stephanie Jane Evans

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year end	Income	Spending
31/12/2024	£89k	£58k
31/12/2023	£103k	£64k
31/12/2022	£65k	£70k
31/12/2021	£45k	£65k
31/12/2020	£89k	£65k

Common questions

Is LAM ACTION financially healthy?

Per its FY2024 accounts: The accounts state that total income decreased to £89,392 in 2024 from £102,582 in 2023, primarily due to timing variances in Gift Aid and a reduction in donations. Despite this, the charity generated a net income of £31,576 and held cash reserves of £280,598 at year-end, which significantly exceeds its stated policy target of 12 months' operating expenditure. The charity operates with only one paid employee, relying on volunteers for all other activities. Its FY2024 accounts were independently examined.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funder	Date	Amount	Purpose
The National Lottery Community Fund	22/10/2020	£8k	Funding to support women who suffer from LAM and their families