SUDEP ACTION
Registered charity 1164250 · accounts filings on the Charity Commission register · also known as EPILEPSY BEREAVED · also registered in Scotland as SC047223 (OSCR)
SUDEP Action exists to support those bereaved by SUDEP - Sudden Unexpected Death in Epilepsy - and works towards prevention of deaths from epilepsy. The Charity offers support to the bereaved, provides information, effects change, raises awareness, sponsors research and education, captures data via the Epilepsy Deaths Register and acts as a focal point for global communication regarding SUDEP.
Causes: The Advancement Of Health Or Saving Of Lives · Other Charitable Purposes · Grant history (this charity is a funder) · website · Get email alerts
Financial health, per its FY2025 accounts
The accounts state that the charity reported a net expenditure of £178,374 for the year, resulting in a decrease in total funds from £560,738 to £382,364. The trustees confirmed that the charity has adequate resources to continue in operational existence for the foreseeable future, adopting the going concern basis of accounting. The charity operates two defined contribution pension schemes and incurred costs related to a fraud investigation.
Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.
Public fundraising profile: JustGiving — SUDEP Action (matched by registered charity number).
Public profiles (found on the charity’s own website): facebook · instagram · linkedin
Structured financials (annual return, FY ending 31/03/2025)
Cost of raising funds
£57k
Reported reserves equal ~4.8 months of spending — below the median for charities its size (median 5.2 months; benchmarks).
Per its annual return, largest income source: Donations and legacies (97% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.
Per its annual return, cost of raising funds: 11.0% of total income — above the median for charities its size (4.9%) (benchmarks).
Register events
- Received assets from another charity (09/12/2024) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Dr JOHN RAYMOND HIRSTchair
- ALEXANDRA ELEANOR STIRLING
- David James Raywood Sibree
- Dr Rhys Thomas · trustee of 1 other charity
- Dr William Owen Pickrell · trustee of 1 other charity
- Paul Warren
- Professor Josemir W Sander
- Rachel Shah
Trustee list from the Charity Commission register (current, not historical).
Operates in: Scotland · Throughout England And Wales
Income and spending
Common questions
Is SUDEP ACTION financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a net expenditure of £178,374 for the year, resulting in a decrease in total funds from £560,738 to £382,364. The trustees confirmed that the charity has adequate resources to continue in operational existence for the foreseeable future, adopting the going concern basis of accounting. The charity operates two defined contribution pension schemes and incurred costs related to a fraud investigation. Its FY2025 accounts were independently examined.
Who funds SUDEP ACTION?
Funders whose own accounts filings name SUDEP ACTION as a grant recipient include BERNARD LEWIS FAMILY CHARITABLE TRUST, MR AND MRS J A PYE'S CHARITABLE SETTLEMENT, SSP FOUNDATION.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.
Charities like this
Semantically similar by activities and financial character, from our analysed corpus. Compare with EPILEPSY SOCIETY.
Side by side with its peers
Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.