CURE EB (FORMERLY KNOWN AS SOHANA RESEARCH FUND)

Registered charity 1158672 · accounts filings on the Charity Commission register · also known as SOHANA RESEARCH FUND, SRF

SRF seeks to assist those suffering from Epidermolysis Bullosa ("EB"), in particular but not exclusively by making grants:(1) to fund medical research and/or clinical trials anywhere in the world for the purpose of discovering, developing and delivering treatments for EB; and(2) to fund the treatment of patients who are suffering from EB.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · Grant history (this charity is a funder) · website · Get email alerts

Financial health, per its FY2024 accounts

The accounts state that unrestricted reserves were £235,377 at year-end, while total net assets stood at £5,125,552. The trustees report that reserves substantially exceeded commitments, mitigating the principal risk of fundraising insufficiency. The charity maintains a low-cost operating base and does not require a significant unrestricted reserve fund to meet operating costs.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by Mitchell Charlesworth (Audit) Limited. Discloses 4 of 6 completeness components.

Public fundraising profile: JustGiving — Cure EB (matched by registered charity number).

Leadership, per the charity’s website

• Sharmila — Founder and Trustee (source)

Listed on the charity’s own website when we last crawled it; roles may have changed. Pay-band disclosures above are anonymous statutory disclosures and are not attributed to any named individual.

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• Goldman Sachs Gives — “For example, a very significant donation from Goldman Sachs Gives enabled the EBSTEM trial to start, which would otherwise been significantl…” (source page)
• Redburn — “Redburn is proud to have supported Sohana Research Fund as one of our charities of the year. It’s a great charity to work with and we hope o…” (source page)

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/12/2024)

Reported reserves equal ~2.0 months of spending — in the bottom quarter for charities its size (median 4.8 months; benchmarks).

Per its annual return, largest income source: Donations and legacies (99% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 3.4% of total income — below the median for charities its size (5.2%) (benchmarks).

Register events

• Received assets from another charity (08/12/2021) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• Duncan Wales
• JAMES DOUGLAS COLLINS
• MICHAEL GEORGES DE LATHAUWER
• PROFESSOR DAVID KELSELL
• Rachel Lesiter
• SHARMILA VIJAYANTHI NIKAPOTA
• TAZIM HALL

Trustee list from the Charity Commission register (current, not historical).

Operates in: France · Spain · Throughout England And Wales · United States

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with DEBRA.

• DEBRA income £18.2m
• THE EHLERS-DANLOS SUPPORT UK income £435k
• THE SCAR FREE FOUNDATION income £493k
• PTEN RESEARCH FOUNDATION income £716k
• SIGHT RESEARCH UK income £871k
• THE NICHOLLS SPINAL INJURY FOUNDATION income £262k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.