ASSOCIATION FOR MULTIPLE ENDOCRINE NEOPLASIA DISORDERS

Registered charity 1153890 · accounts filings on the Charity Commission register · also known as AMEND

AMEND PROVIDES SUPPORT AND INFORMATION TO PATIENTS FAMILIES AND CARERS AFFECTED BY THE RARE GENETIC DISORDERS MULTIPLE ENDOCRINE NEOPLASIA, AS WELL AS TO THOSE WITH ASSOCIATED FAMILIAL AND SPORADIC TUMOURS. AMEND AIMS TO PROMOTE GREATER KNOWLEDGE OF THE BEST CARE AND MANAGEMENT OF MEN AND ASSOCIATED TUMOUR PATIENTS AMONGST THE MEDICAL PROFESSION.

Objects

TO RELIEVE PEOPLE WHO SUFFER FROM MULTIPLE ENDOCRINE NEOPLASIA (M.E.N.) OF ALL TYPES, THEIR FAMILIES, FRIENDS AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS:(1) ACTING AS A RELIABLE AND ACCURATE SOURCE OF INFORMATION FOR THE PUBLIC CONCERNING M.E.N. AND ITS ASSOCIATED SPORADIC GROWTHS, BY:(A) WORKING WITHIN THE APPROVAL OF MEMBERS OF THE MEDICAL PROFESSION WHO ARE DIRECTLY INVOLVED IN THE TREATMENT OF AND RESEARCH INTO M.E.N.(B) COLLECTING, COLLATING AND DISTRIBUTING APPROPRIATE AND APPROVED INFORMATION.(C) PRODUCING THE CHARITY’S OWN PATIENT-AIMED APPROVED INFORMATION.(2) PROMOTING A WIDER KNOWLEDGE OF THE ILLNESS AMONG THE MEDICAL PROFESSION TO ASSIST IN EARLY AND ACCURATE DIAGNOSIS.(3) PROVIDING RELIABLE AND ACCURATE INFORMATION WITH REGARD TO GENETIC TESTING FOR PEOPLE WITH M.E.N. AND ITS ASSOCIATED FAMILIAL GROWTHS, THEIR FAMILIES, FRIENDS AND CARERS.(4) PROVIDING EMOTIONAL SUPPORT TO PATIENTS, THEIR FAMILIES, FRIENDS AND CARERS IN THE FORM OF CONTACT WITH OTHERS IN SIMILAR SITUATIONS IN ORDER TO FACILITATE THE SHARING OF EXPERIENCES.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Registered contact address: Tonbridge and Malling, South East, England (from the postcode on the register)

Financial health, per its FY2025 accounts

The accounts state that the charity reported a deficit of £8,963 for the year ended 31 December 2025, an improvement on the prior year's deficit of £10,843, despite a decrease in total incoming resources to £82,239. Per the trustees' report, unrestricted reserves stood at £72,949, which exceeds the stated policy target of a minimum £60,000, and the trustees consider there are no material uncertainties regarding the charity's ability to continue as a going concern.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Complaints handling
• Complaints policy and procedures
• Financial reserves policy and procedures
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• The Houghton Dunn Charitable Trust — “The Houghton Dunn Charitable Trust annual unrestricted grant” (source page)
• Rezolute Inc. — “Rezolute Inc. towards the 2026 NLA Patient Summit ($7,000)” (source page)

Public profiles (found on the charity’s own website): facebook

Trustees · trustee networks

• Andrew Price
• Dr John Ayuk
• GILL MASTERS
• Gemma Swindells
• Graeme Cohen
• Lauren Wheeler ACA
• Miriam Asia
• PROFESSOR KARIM MEERAN
• Robert Millinship
• Sarah Norman
• Shahab Khan

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with ASSOCIATION OF BREAST SURGERY.

• ASSOCIATION OF BREAST SURGERY income £1.3m
• ADAPT (NORTH EAST) income £1.0m
• NEUROENDOCRINE CANCER UK income £696k
• BRITISH ASSOCIATION OF ENDOCRINE AND THYROID SURGEONS income £232k
• NEOTREE income £1.2m
• ANAND & SETHI FAMILY CHARITY TRUST income £190k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.